Patient Stories

Evan received his gift of life on May 21st, 2020 during a 10 hour transplant surgery. He was first diagnosed at 18 months old with PFIC-3, a hereditary liver disease, which for years had been treated.

Combined with end stage liver disease, which I also had, the condition can deteriorate quickly and become life threatening.

You have to stay positive at all times. Family and friends are the key to helping you through the rough times. Follow the directions from your medical care team. Be compliant.

Lillian had a Kasai procedure to attempt to create an artificial bile flow. When that failed, she was listed for transplant.

I was diagnosed a couple weeks before my birthday with Stage 4 liver disease. I was more specifically told that I had Autoimmune Hepatitis and that I desperately need a new liver.

I was diagnosed with Primary Sclerosing Cholangitis (PSC) when I was 23 years old, a year into my marriage and living far from home for the first time.

I was diagnosed with Primary Biliary Cholangitis (PBC) in April 2016. Previous to the diagnosis, I experienced horrible fatigue that continued for 7 years before we figured out the cause.

I was diagnosed with Alpha-1 Antitrypsin Deficiency and became very ill very fast. I was only sick for 5 months before I was at a 40 MELD and earnestly dying.

At two months old, our son Will was diagnosed with Biliary Atresia, a condition where the bile ducts do not function properly and bile backs up into the liver resulting in liver failure.

I was officially with diagnosed Autoimmune Hepatitis – Primary Biliary Cholangitis Overlap Syndrome in 2011.

At age three, I was diagnosed with Primary Sclerosing Cholangitis/Autoimmune Hepatitis overlap as well as Crohn’s disease.

When they ran his blood panel, the immediate results showed that his ammonia level was over 1,000. Ammonia is processed in the liver.