Patient Stories

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Kim C.
September 29, 2020

Combined with end stage liver disease, which I also had, the condition can deteriorate quickly and become life threatening.

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Robert F.
September 22, 2020

You have to stay positive at all times. Family and friends are the key to helping you through the rough times. Follow the directions from your medical care team. Be compliant.

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Lillian H.
September 18, 2020

Lillian had a Kasai procedure to attempt to create an artificial bile flow. When that failed, she was listed for transplant.

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Heather K.
September 16, 2020

I was diagnosed a couple weeks before my birthday with Stage 4 liver disease. I was more specifically told that I had Autoimmune Hepatitis and that I desperately need a new liver.

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Amanda W.
September 14, 2020

I was diagnosed with Primary Sclerosing Cholangitis (PSC) when I was 23 years old, a year into my marriage and living far from home for the first time.

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Amy C.
September 10, 2020

I was diagnosed with Primary Biliary Cholangitis (PBC) in April 2016. Previous to the diagnosis, I experienced horrible fatigue that continued for 7 years before we figured out the cause.

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Linda K.
September 9, 2020

I was diagnosed with Alpha-1 Antitrypsin Deficiency and became very ill very fast. I was only sick for 5 months before I was at a 40 MELD and earnestly dying.

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Will B.
September 1, 2020

At two months old, our son Will was diagnosed with Biliary Atresia, a condition where the bile ducts do not function properly and bile backs up into the liver resulting in liver failure.

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Jackie C.
September 1, 2020

I was officially with diagnosed Autoimmune Hepatitis – Primary Biliary Cholangitis Overlap Syndrome in 2011.

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Sophie H.
August 27, 2020

At age three, I was diagnosed with Primary Sclerosing Cholangitis/Autoimmune Hepatitis overlap as well as Crohn’s disease.

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Camden U.
August 6, 2020

When they ran his blood panel, the immediate results showed that his ammonia level was over 1,000. Ammonia is processed in the liver.

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Amber R.
July 29, 2020

I was diagnosed with Advanced Hepatocellular Carcinoma (Liver Cancer). This type of cancer usually affects people that have Hepatitis C or Cirrhosis from alcoholism, none of which I have.

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