Patient Stories

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Jack & Gene J.
May 4, 2021

Ten years earlier, Jack was diagnosed with alpha-1 antitrypsin deficiency, an inherited disorder that can ultimately lead to liver failure.

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Carley V: Blog Introduction
April 20, 2021

I currently manage a chronic liver disease called Autoimmune Hepatitis. At the age of 12 I fell into complete liver failure and was rushed to Egleston Children’s Hospital in Atlanta.

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Michaela L. & Haley W.
April 17, 2021

Michaela Layton was diagnosed at age 17 with Wilson Disease, a rare genetic disease that causes copper buildup in the liver.

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Heather
January 21, 2021

After receiving an AIP (Acute Intermittent Porphyria) diagnosis at age 16, Heather struggled for years to manage her symptoms, experiencing multiple attacks a year.

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Jay B.
January 5, 2021

Never would have thought I would have liver disease. I began my journey with liver disease in 2011 and despite ongoing treatments and medication, I ended up being hospitalized in May of 2012.

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Frank M.
January 5, 2021

Thinking it was a complication of the surgery, and turns out it wasn’t. I was later diagnosed with primary sclerosing cholangitis (PSC), a rare liver disease.

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Molly
January 5, 2021

After weeks of tests, we finally received a diagnosis… Biliary Atresia. Molly’s surgeon shed tears with us as she delivered this heartbreaking news.

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Pam S.
January 5, 2021

After a battery of tests, she learned from her Mayo Clinic team that she needed a liver transplant, a message that stunned her, given her history of excellent health.

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Carter
December 1, 2020

Carter had jaundice since birth, but not the kind that goes away with time. His doctors confirmed that he had liver disease when he was 7 weeks old.

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Philip S.
November 25, 2020

Working for ALF these past 10 years has been a mission for me. I had NASH, I’ve had a transplant, and every time I am able to offer someone hope, I feel so good.

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David R.
November 10, 2020

I didn’t think much about my weight or health during this time. I was diagnosed with a fatty liver and my weight became out of control when I hit 352 pounds.

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Julie D.
November 4, 2020

Julie donated 65% of her liver to a stranger. After looking into living donation, Julie came to find that many transplant centers did not do altruistic liver donations.

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