Patient Stories

Filter by Category:
Sawyer C.
July 28, 2020

When my son, Sawyer, was just eight days old he was diagnosed with a rare liver disease called Biliary Atresia and underwent his first surgery.

Read More
Richard S.
July 24, 2020

I was diagnosed with End-Stage Liver Disease caused from Hepatic Encephalopathy. That began a journey during which I was to learn first hand of the benefits of ALF.

Read More
Amy H.
July 23, 2020

Fifteen years ago I was diagnosed with a very rare chronic auto-immune disease called, Primary Biliary Cholangitis (PBC).

Read More
Kennedie K.
July 23, 2020

Kennedie has Progressive Familial Intrahepatic Cholestasis type 2. Her liver doesn’t produce the protein that exports bile out of the liver to break down fat and absorb fat soluble vitamins.

Read More
Julie M.
July 23, 2020

My blood work was flagged for high liver enzymes. I spent the summer having additional blood work, an abdominal ultrasound, and a Gastroenterologist who ordered a liver biopsy.

Read More
Madelyn S.
July 23, 2020

Madelyn was diagnosed at 7 weeks with Biliary Atresia. Her first major surgery, The Kasai Procedure failed and Maddie was evaluated and placed on the liver transplant waitlist.

Read More
Victoria M.
July 17, 2020

My journey began when I was 8 weeks old, when I went down to Riley Children’s Hospital in Indianapolis, Indiana to receive the Kasai Procedure.

Read More
Adriana G.
July 2, 2020

At 41 days old Adriana underwent a cholangiogram that resulted in her being officially diagnosed with Biliary Atresia and receiving her Kasai procedure on January 17, 2019.

Read More
Luke M.
June 30, 2020

At 10 weeks old I was diagnosed with Biliary Atresia and I underwent my first operation of many, called a Kasai.

Read More
Kimberly M.
June 26, 2020

The first symptom of my liver disease was vomiting a large amount of blood. I was told I had end stage cirrhosis, when the day before I had no idea anything was wrong.

Read More
Bryan D.
May 20, 2020

Bryan was a 22 year old U.S. Marine in perfect health. He was diagnosed with a rare chronic liver disease (Primary Sclerosing Cholangitis).

Read More
Stan I.
May 20, 2020

A routine blood test at an annual physical showed elevated liver enzyme tests. It was then I received an official diagnosis of Hepatitis C.

Read More
1 5 6 7 8 9 20
cross linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram