Patient Stories

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Carter B.
January 31, 2023

Like many newborns, Carter was born slightly jaundice. A few weeks after leaving the hospital, Carter began to develop bilateral inguinal hernias – something that would soon be a blessing in disguise.

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Lisa’s Story
July 19, 2022

I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?

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Tully Girls Run for Dad
June 16, 2022

Sarah and Emily Tully have cheered their parents, Deb and Keith, on from the sidelines of the Boston Marathon for nearly […]

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Dao D.
June 7, 2022

I have worked in in the area of hepatitis B virus infection (HBV) from basic research to clinical science and patient care as well as outreach/advocacy programs for more than 9 years.

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Brenda C.
June 6, 2022

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

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Aidan D.
June 2, 2022

Within hours, Heather and Jeff received the shocking news from doctors: Aidan was in “acute liver failure”.

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Bobby’s Story
May 25, 2022

Most know Bobby Rydell from hit songs like Volare. However, what most don’t know is that in 2012, Bobby underwent a double organ transplant, receiving 75% of a liver and one kidney.

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May 25, 2022

Since the day she was born, Valen Keefer, has faced a challenging medical heritage. Everyone on her mother’s side has suffered from polycystic kidney disease (PKD).

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Michael P.
April 16, 2022

I had Hepatitis C which had been dormant for years. Fortunately a liver biopsy showed that the liver had not yet been seriously affected.

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Kaila’s Story
April 15, 2022

Kaila became involved with the American Liver Foundation (ALF) in 2017 after her friend, Courtney, was diagnosed with liver cancer.

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Anne’s Story
April 5, 2022

In January 2017, Anne was diagnosed with end-stage liver disease. Over the next two months, she experienced several hospitalizations, multiple side effects and of course, tremendous worry.

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Casey’s Story
March 31, 2022

Casey’s pediatrician referred her to a liver specialist and after multiple tests, she was diagnosed with Wilson Disease.

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