Patient Stories

Filter by Category:
In my case, this diagnosis was preventable
September 8, 2023

While caring for his ailing mother, Daniel let his own health go by the wayside. By the time he decided to take back control, it was too late. Read about Daniels story and importance of liver health and liver disease prevention.

Read More
Only 30% of organ donors represent people from diverse and under-represented communities
July 31, 2023

David waited for more than a year to receive his transplant from a living donor. Help ALF reach more people from diverse communities and spread awareness on how to become a living donor.

Read More
Chronic Liver Disease Brought Us Together
June 30, 2023

Chris and Kaila bonded over their diagnosis, their passion for running and so many other things. Days turned into weeks, weeks into months and months into years – it was clear this was more than a friendship, this was forever.

Read More
A Positive Role Model for All
June 1, 2023

As a young man, I didn’t want people to think I was perpetually sick; and I wasn’t going to let liver disease define me.

Read More
I had no idea how to help him navigate this scary and unpredictable diagnosis
May 1, 2023

Stacey became involved with ALF after attending a caregivers’ program at the hospital where her partner, Zach was diagnosed with end stage liver disease.

Read More
Liver Disease Almost Took My Life; An Organ Donation Saved It
March 31, 2023

Darryl found his niche in life but then liver disease took control and he needed a lifesaving transplant.

Read More
Carter B.
January 31, 2023

Like many newborns, Carter was born slightly jaundice. A few weeks after leaving the hospital, Carter began to develop bilateral inguinal hernias – something that would soon be a blessing in disguise.

Read More
Lisa’s Story
July 19, 2022

I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?

Read More
Tully Girls Run for Dad
June 16, 2022

Sarah and Emily Tully have cheered their parents, Deb and Keith, on from the sidelines of the Boston Marathon for nearly […]

Read More
Dao D.
June 7, 2022

I have worked in in the area of hepatitis B virus infection (HBV) from basic research to clinical science and patient care as well as outreach/advocacy programs for more than 9 years.

Read More
Brenda C.
June 6, 2022

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

Read More
Aidan D.
June 2, 2022

Within hours, Heather and Jeff received the shocking news from doctors: Aidan was in “acute liver failure”.

Read More
1 2 3 19
cross linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram