Patient Stories

Carter had jaundice since birth, but not the kind that goes away with time. His doctors confirmed that he had liver disease when he was 7 weeks old.

Working for ALF these past 10 years has been a mission for me. I had NASH, I’ve had a transplant, and every time I am able to offer someone hope, I feel so good.

I didn’t think much about my weight or health during this time. I was diagnosed with a fatty liver and my weight became out of control when I hit 352 pounds.

Julie donated 65% of her liver to a stranger. After looking into living donation, Julie came to find that many transplant centers did not do altruistic liver donations.

Her liver enzymes came back elevated. The nurse practitioner wanted Paysen to see a pediatric gastroenterologist.

We were then introduced by a pediatric GI specialist to a disease named Biliary Atresia. We were told the only way to save OUR baby girl was going through a Kasai Procedure.

I was diagnosed with Biliary Atresia at around 6-months-old. I was put on the transplant list, and received my new liver on January 14, 1983.

A medical team at New York Columbia Presbyterian Hospital conducted its first living donor liver transplant surgery on Kevin, my younger brother. I was the living donor.

I was first diagnosed with Hepatitis C on October 16, 2019. I was lost and confused. I had no idea what I was dealing with.

Elaina was diagnosed with Biliary Atresia at two weeks old and had her Kasai procedure done at three weeks old.

Like most people, I had never heard of this disease before but it all changed when my daughter, Julia, was diagnosed with Biliary Atresia in the fall of 2017 at just 3 months old.

I was diagnosed with Hepatitis C in 1993. I tried multiple treatment plans back then and nothing worked. My disease continued to ravage my liver, causing so many problems.