Patient Stories

Filter by Category:
A Decade-long Mystery
March 1, 2024

When Bruce began feeling continuously fatigued, he assumed it was just his workload. Unfortunately, it ended up becoming an all-consuming mystery. Learn about Bruce’s story and how his persistence finally helped him achieve a working diagnosis and how he is now giving back to move forward.

Read More
Rare Disease Day 2024
February 29, 2024

Bruce Dimmig, motivated ALF Advocacy Ambassador and volunteer extraordinaire, has been living with the uncertainties of life with a rare liver disease for more than a decade and a half. Read about his story and how his persistence helped him get to a working diagnosis nearly ten years later.

Read More
Chronic Liver Disease Brought Us Together
June 30, 2023

Chris and Kaila bonded over their diagnosis, their passion for running and so many other things. Days turned into weeks, weeks into months and months into years – it was clear this was more than a friendship, this was forever.

Read More
Lisa’s Story
July 19, 2022

I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?

Read More
May 25, 2022

Since the day she was born, Valen Keefer, has faced a challenging medical heritage. Everyone on her mother’s side has suffered from polycystic kidney disease (PKD).

Read More
Kaila’s Story
April 15, 2022

Kaila became involved with the American Liver Foundation (ALF) in 2017 after her friend, Courtney, was diagnosed with liver cancer.

Read More
Anne’s Story
April 5, 2022

In January 2017, Anne was diagnosed with end-stage liver disease. Over the next two months, she experienced several hospitalizations, multiple side effects and of course, tremendous worry.

Read More
Casey’s Story
March 31, 2022

Casey’s pediatrician referred her to a liver specialist and after multiple tests, she was diagnosed with Wilson Disease.

Read More
David’s Story
January 18, 2022

David is a two-time liver transplant recipient. In 1997, he received a liver, and in 2007 he received the liver and kidney.

Read More
Jack & Gene J.
May 4, 2021

Ten years earlier, Jack was diagnosed with alpha-1 antitrypsin deficiency, an inherited disorder that can ultimately lead to liver failure.

Read More
Michaela L. & Haley W.
April 17, 2021

Michaela Layton was diagnosed at age 17 with Wilson Disease, a rare genetic disease that causes copper buildup in the liver.

Read More
January 21, 2021

After receiving an AIP (Acute Intermittent Porphyria) diagnosis at age 16, Heather struggled for years to manage her symptoms, experiencing multiple attacks a year.

Read More
1 2 3 4
cross linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram