Online Support Groups
Explore these free, online support resources to help you as you navigate your liver health journey. If you are searching for local or in-person support groups, visit the State Resources section of our Resource Center.
AcariaHealth Hepatitis C
Meets: Various Times Online (Listed below)
Be a part of these one of a kind group discussions regarding
Hepatitis C therapies!
Upcoming Sessions:
First Timers (for treatment naïve patients)
First Thursday of each month at 9pm EST
Give it Another Go (for treatment experienced patients)
Second Thursday of each month at 12pm EST
One Day at a Time (for patients on active treatment)
Third Thursday of each month at 12pm EST
What Can I Do About…? (for patients seeking help with side
effect management)
Fourth Thursday* of each month at 9pm EST
*Nov. and Dec. sessions will be held on the third Thursday due to the Holidays
Contact Barbara Morgan, RN for more information.
Phone: (800) 511-5144 Ext. 1033
Email: barbara.morgan@acariahealth.com
ALF Online Support Group on Inspire
Biliary Atresia Support Group on Facebook
Visit Life with Biliary Atresia: An American Liver Foundation Support Group on Facebook.
Hep C Post-Treatment – Survivors Group
“Just because you got the monkey off your back, doesn’t mean the circus has left town.”
This group is for anyone who is POST Treatment for Hepatitis C no matter which drug they took. Some of us have just completed treatment, some are SVR12 (cured), some have relapsed. We are here to get healthy regardless and hopefully save our livers! In the process we will stay in touch to monitor our health and get through whatever issues we have Post Treatment. May we all live happy, healthy lives going forward! We will allow links to information and research and ask that you be careful about your research and article shares and that they be from a reliable source, and also pay attention to the date of the research. IF IT IS PRIOR TO 9/2014, it is possibly out of date information.
HBV Adoption Support Group
HBV Adoption is a group that serves as a source of information and support for Parents of children with the hepatitis B virus. For the benefit of our children’s privacy, all members must be approved for membership. To join, go to https://groups.yahoo.com/hbv-adoption and click the “Join Group” button. Let me know why you are interested and you are on your way to support with over 1150 other parents.
Contact: Bambi Winkler
Liver Cancer Support Group on Facebook
Visit Living with Liver Cancer: An American Liver Foundation Support Group on Facebook.
Liverfamilies.net
Parents of Children
Mayo Clinic Transplant Support Group
Mayo Clinic Connect is an online community where you can share your experiences and find support from people like you. You can also read expert blogs and take part in educational events. Join the transplant discussion group where you can meet people living with a transplant, waiting for a transplant or serving as caregivers.
NASH Support Group on Facebook
Visit the ALF Nonalcoholic Steatohepatitis (NASH) support group on Facebook.
PBC Digest
The Primary Billiary Cirrhosis Organization aka PBCers is a wonderful source of support and education for primary biliary cirrhosis (PBC) patients, family members, friends and other autoimmune liver disease patients. Formed in 1996, the PBCers is the largest online PBC support group with almost 3,000 members worldwide.
As a group, we discuss medical information, pain management, medications, research, ask questions, transplantation, vent our anger & fears, speak freely on the ups and downs of daily living, share our personal experiences and build lasting friendships.
Contact Linie Moore, President for more information.
Phone: (346) 302-1620
Web: www.pbcers.org
Email: pbcsite@pbcers.org
PBC Support Group on Facebook
Visit the ALF Primary Biliary Cholangitis support group on Facebook.
Medstar Georgetown Transplant Institute Liver Transplant Support Group
Please note that all meetings will be held virtually via Zoom until further notice.
Audience: Liver patients can share their transplant experiences and ask questions. All adult patients, families, and caregivers are welcome to join.
Why: The transplant process is both mentally and physically draining. Meeting others who are in a similar situation can be helpful and motivating.
When: Usually the third week, alternating between Mondays and Thursdays, 5:30 – 6:30 p.m.
Contact: Monica Hanza, MSW, LGSW
Phone: 202-444-0439
E-mail: Monica.D.Hanza@medstar.net
Last updated on December 5th, 2022 at 11:02 am