Patient Stories

I was diagnosed with Alpha-1 Antitrypsin Deficiency and became very ill very fast. I was only sick for 5 months before I was at a 40 MELD and earnestly dying.

At two months old, our son Will was diagnosed with Biliary Atresia, a condition where the bile ducts do not function properly and bile backs up into the liver resulting in liver failure.

I was officially with diagnosed Autoimmune Hepatitis – Primary Biliary Cholangitis Overlap Syndrome in 2011.

At age three, I was diagnosed with Primary Sclerosing Cholangitis/Autoimmune Hepatitis overlap as well as Crohn’s disease.

When they ran his blood panel, the immediate results showed that his ammonia level was over 1,000. Ammonia is processed in the liver.

I was diagnosed with Advanced Hepatocellular Carcinoma (Liver Cancer). This type of cancer usually affects people that have Hepatitis C or Cirrhosis from alcoholism, none of which I have.

When my son, Sawyer, was just eight days old he was diagnosed with a rare liver disease called Biliary Atresia and underwent his first surgery.

I was diagnosed with End-Stage Liver Disease caused from Hepatic Encephalopathy. That began a journey during which I was to learn first hand of the benefits of ALF.

Fifteen years ago I was diagnosed with a very rare chronic auto-immune disease called, Primary Biliary Cholangitis (PBC).

Kennedie has Progressive Familial Intrahepatic Cholestasis type 2. Her liver doesn’t produce the protein that exports bile out of the liver to break down fat and absorb fat soluble vitamins.

My blood work was flagged for high liver enzymes. I spent the summer having additional blood work, an abdominal ultrasound, and a Gastroenterologist who ordered a liver biopsy.

Madelyn was diagnosed at 7 weeks with Biliary Atresia. Her first major surgery, The Kasai Procedure failed and Maddie was evaluated and placed on the liver transplant waitlist.