Patient Stories

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Michael Kerr
October 18, 2021

My liver was in trouble. I learned that the ducts from the liver that deliver bile to the intestines had become damaged. There was a good possibility my liver would eventually fail.

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Jess S.
August 23, 2021

I was admitted to the local hospital for bleeding varices. I underwent surgery to stop the bleeding and was told I could possibly get a liver within the next few days.

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Raphael K.
June 28, 2021

I was born with the liver disease known as Biliary Atresia. My parent’s first suspected something was wrong when they noticed that my skin and eyes were yellowing.

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Brian B.
June 5, 2021

I had difficulty with my memory and I began to experience loss of appetite, lethargy and difficulty concentrating. All the symptoms that I know now to be of liver failure.

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Jack & Gene J.
May 4, 2021

Ten years earlier, Jack was diagnosed with alpha-1 antitrypsin deficiency, an inherited disorder that can ultimately lead to liver failure.

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Carley V: Blog Introduction
April 20, 2021

I currently manage a chronic liver disease called Autoimmune Hepatitis. At the age of 12 I fell into complete liver failure and was rushed to Egleston Children’s Hospital in Atlanta.

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Michaela L. & Haley W.
April 17, 2021

Michaela Layton was diagnosed at age 17 with Wilson Disease, a rare genetic disease that causes copper buildup in the liver.

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Heather
January 21, 2021

After receiving an AIP (Acute Intermittent Porphyria) diagnosis at age 16, Heather struggled for years to manage her symptoms, experiencing multiple attacks a year.

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Jay B.
January 5, 2021

Never would have thought I would have liver disease. I began my journey with liver disease in 2011 and despite ongoing treatments and medication, I ended up being hospitalized in May of 2012.

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Frank M.
January 5, 2021

Thinking it was a complication of the surgery, and turns out it wasn’t. I was later diagnosed with primary sclerosing cholangitis (PSC), a rare liver disease.

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Molly
January 5, 2021

After weeks of tests, we finally received a diagnosis… Biliary Atresia. Molly’s surgeon shed tears with us as she delivered this heartbreaking news.

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Pam S.
January 5, 2021

After a battery of tests, she learned from her Mayo Clinic team that she needed a liver transplant, a message that stunned her, given her history of excellent health.

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