Patient Stories

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Liver Disease Almost Took My Life; An Organ Donation Saved It
March 31, 2023

Darryl found his niche in life but then liver disease took control and he needed a lifesaving transplant.

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Carter B.
January 31, 2023

Like many newborns, Carter was born slightly jaundice. A few weeks after leaving the hospital, Carter began to develop bilateral inguinal hernias – something that would soon be a blessing in disguise.

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Lisa’s Story
July 19, 2022

I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?

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Tully Girls Run for Dad
June 16, 2022

Sarah and Emily Tully have cheered their parents, Deb and Keith, on from the sidelines of the Boston Marathon for nearly […]

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NASH and the Roller-Coaster of Emotions
June 9, 2022

Meet David Frank, ALF National Board Member, caregiver and passionate advocate. September 2014 will be forever etched in his memory, a roller-coaster of emotions in their most extreme form.

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Dao D.
June 7, 2022

I have worked in in the area of hepatitis B virus infection (HBV) from basic research to clinical science and patient care as well as outreach/advocacy programs for more than 9 years.

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Brenda C.
June 6, 2022

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

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Aidan D.
June 2, 2022

Within hours, Heather and Jeff received the shocking news from doctors: Aidan was in “acute liver failure”.

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Bobby’s Story
May 25, 2022

Most know Bobby Rydell from hit songs like Volare. However, what most don’t know is that in 2012, Bobby underwent a double organ transplant, receiving 75% of a liver and one kidney.

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May 25, 2022

Since the day she was born, Valen Keefer, has faced a challenging medical heritage. Everyone on her mother’s side has suffered from polycystic kidney disease (PKD).

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Ellen’s Story
May 3, 2022

Ellen’s pregnancy was normal and both babies thrived until shortly after birth when their daughter, Sadie, presented with newborn jaundice.

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Don’s Story
April 20, 2022

In February 2012, Don heard those three words everyone dreads, “You have cancer.” Don was diagnosed with liver cancer and given one option for survival – a liver transplant.

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