Patient Stories

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Brenda C.
June 6, 2022

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

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Aidan D.
June 2, 2022

Within hours, Heather and Jeff received the shocking news from doctors: Aidan was in “acute liver failure”.

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Bobby’s Story
May 25, 2022

Most know Bobby Rydell from hit songs like Volare. However, what most don’t know is that in 2012, Bobby underwent a double organ transplant, receiving 75% of a liver and one kidney.

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Valen
May 25, 2022

Since the day she was born, Valen Keefer, has faced a challenging medical heritage. Everyone on her mother’s side has suffered from polycystic kidney disease (PKD).

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Michael P.
April 16, 2022

I had Hepatitis C which had been dormant for years. Fortunately a liver biopsy showed that the liver had not yet been seriously affected.

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Kaila’s Story
April 15, 2022

Kaila became involved with the American Liver Foundation (ALF) in 2017 after her friend, Courtney, was diagnosed with liver cancer.

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Anne’s Story
April 5, 2022

In January 2017, Anne was diagnosed with end-stage liver disease. Over the next two months, she experienced several hospitalizations, multiple side effects and of course, tremendous worry.

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Casey’s Story
March 31, 2022

Casey’s pediatrician referred her to a liver specialist and after multiple tests, she was diagnosed with Wilson Disease.

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Sydney’s Story
March 31, 2022

At age 12, Sydney Sullivan learned she had a serious liver disease that would ultimately lead to a liver transplant.

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Mackenzie’s Story
January 28, 2022

My parents were on the next flight to Austin and I was trying to understand how I went from a healthy, 26 year old to being consulted by the hepatic transplant team in the hospital.

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David’s Story
January 18, 2022

David is a two-time liver transplant recipient. In 1997, he received a liver, and in 2007 he received the liver and kidney.

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Tessa’s Story
December 15, 2021

I was born with Biliary Atresia. I was dealt an unfair hand but have never viewed it that way and because of that I am the person I am today.

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