Patient Stories

Darryl found his niche in life but then liver disease took control and he needed a lifesaving transplant.

Like many newborns, Carter was born slightly jaundice. A few weeks after leaving the hospital, Carter began to develop bilateral inguinal hernias – something that would soon be a blessing in disguise.

I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?

Sarah and Emily Tully have cheered their parents, Deb and Keith, on from the sidelines of the Boston Marathon for nearly […]

Meet David Frank, ALF National Board Member, caregiver and passionate advocate. September 2014 will be forever etched in his memory, a roller-coaster of emotions in their most extreme form.

I have worked in in the area of hepatitis B virus infection (HBV) from basic research to clinical science and patient care as well as outreach/advocacy programs for more than 9 years.

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

Within hours, Heather and Jeff received the shocking news from doctors: Aidan was in “acute liver failure”.

Most know Bobby Rydell from hit songs like Volare. However, what most don’t know is that in 2012, Bobby underwent a double organ transplant, receiving 75% of a liver and one kidney.

Since the day she was born, Valen Keefer, has faced a challenging medical heritage. Everyone on her mother’s side has suffered from polycystic kidney disease (PKD).

Ellen’s pregnancy was normal and both babies thrived until shortly after birth when their daughter, Sadie, presented with newborn jaundice.

In February 2012, Don heard those three words everyone dreads, “You have cancer.” Don was diagnosed with liver cancer and given one option for survival – a liver transplant.