For Patients For Caregivers For Medical Professionals

HELPLINE 1-800-465-4837
Mon-Fri 9am – 5pm EST

Wilson Disease – Genetic Testing and Emerging Treatments

Date Posted April 28, 2021 Audience Primary – Patients and caregivers Secondary – Clinicians [Wilson Disease, Rare Liver Diseases] Program This webinar provides guidance and education on the causes, symptoms, diagnosis, and treatment of Wilson Disease. It also touches on the initial signs of Wilson Disease, daily challenges, dietary...

Caring for Patients with Acute Hepatic Porphyria

Date of Program March 18, 2021 Program Description Acute Hepatic Porphyria (AHP) refers to a group of rare, genetic diseases. Symptoms mimic other diseases, including those in the gastrointestinal, gynecological, and neurological, or neuropsychiatric areas. Attacks can be debilitating and sometimes life-threatening. This webinar will help you identify patients...

COVID-19 Vaccine
21 MARCH 2021

Spring 2021 COVID Vaccine Statement & Update

Our newest statement on vaccine use and distribution, new resources available to the liver community, and a call to action. The American Liver Foundation (ALF) believes that everyone should strongly consider getting vaccinated against COVID-19 when they are able to do so.  ALF’s belief aligns with the American Association...

28 FEBRUARY 2021

February 28th is Rare Disease Day!

Have you ever wondered what makes a disease a rare disease? Rare diseases are diseases which affect a small number of people compared to the general population. In Europe, a disease is considered rare when it affects 1 person in 2,000; in the United States, a disease is considered rare...

22 FEBRUARY 2021

Rare Disease Focus February 2021

There are several hundred liver diseases known to exist-many of which are considered to be rare. What is considered rare? In Europe, 1 in 2,000 is considered to be rare, and here in the United States, a disease is generally viewed to be rare when it affects less than 200,000...

Digital Engagement Coordinator

The American Liver Foundation (ALF) is the nation's leading non-profit organization dedicated to liver health and disease prevention. ALF promotes education, advocacy, support services and research for the prevention, treatment and cure of liver disease. PRIMARY FUNCTION/PURPOSE: Serve as an important part of the digital communications team, handling all aspects...

19 FEBRUARY 2021

Pediatric Liver Disease and COVID-19

January 27, 2021 we hosted a panel of experts who answered questions about how COVID-19 is impacting children with liver disease and what you need to know. Participants had the opportunity to has panelists questions during and immediately following the program. We are grateful to Alexion Pharmaceuticals for their...