For Patients Caregiver Tips and Advice For Medical Professionals

Charles DiAngelo

Hepatic Encephalopathy I am a Vietnam war veteran and three weeks after being discharged from the Army I was rushed into the Boston VA hospital with jaundice and was diagnosed with Hepatitis B. That was in 1970 and in 2016 I received a new liver via transplant at the Pittsburgh...

Savannah Rennie

Congenital Hepatic Fibrosis with Portal Hypertension I am a 21 year old Division 1 collegiate volleyball player at the University of California, Berkeley and I was diagnosed with Congenital Hepatic Fibrosis with Portal Hypertension at the age of 19. I received a liver transplant in order to fix the disease...

Jenny Pinkerton

Autoimmune Hepatitis I was diagnosed one year ago after going into acute liver failure. I found out that I have ESLD and HE. Now I am on a transplant list and stable for the time being. I am doing my best to enjoy my gift of life! I am a...

Pam Haberlock

In August 2014, my husband Mike Blackburn fell over in severe pain. Mike was a Vietnam Era Vet. The next day they gave him six to twelve months to live. Nine hospital stays that year and he died August 7th, 2015 at the age of 61. He was not an...

Regina Sanner

Regina was a young mom, expecting her fourth child, when her skin began to turn yellow and itchy. Her doctors thought her issues were related to her pregnancy. Sadly, she lost her daughter at 32 weeks gestation. It was a difficult time, but the doctors expected her to heal physically....

Jack & Gene Johnston

Brothers Jack and Gene Johnston of Illinois grew up having a close relationship. They share home projects, and enjoy golfing and taking Caribbean vacations together. While on a recent vacation, Gene noticed that Jack's health seemed to be rapidly declining. Ten years earlier, Jack was diagnosed with alpha-1 antitrypsin deficiency,...

Michaela Layton & Haley Wilbur

Michaela Layton was diagnosed at age 17 with Wilson's disease, a rare genetic disease that causes copper buildup in the liver. She was a healthy, athletic young woman who rarely got sick, and when she did, she thought she might have the flu. Blood tests at her local hospital proved...

Leonard Strongfellow

Leonard Stringfellow, age 59, became very sick, very quickly. "2014 is a year I'll never forget," says Leonard. "I started gaining weight and was very tired. It was getting hard to breathe." Leonard was in and out of the hospital for several months while doctors tried to determine what was...

Meiyee Chen

During the summer of 2015, Yimeng and Shaonan Chen believed they would need to say goodbye to their baby daughter Meiyee. After taking her to American Family Children’s Hospital in Madison at the beginning of the summer, they learned she had biliary atresia, which meant the bile ducts from her liver were not formed....