Patient Stories

After many visits to the family doctor I was finally referred to a specialist and was diagnosed with Biliary Atresia at 9 weeks old.

I was born with BA and had two surgeries before the age of one. I had no idea why I had these scars and went on with life.

After taking her to American Family Children’s Hospital in Madison at the beginning of the summer, they learned she had biliary atresia, which meant the bile ducts from her liver were not formed.

Our doctor instantly recognized Matthew’s jaundice as the indication of a possibly serious condition.

When she was just two months old, Noel was diagnosed with a liver disease called Biliary Atresia. Her parents were devastated when she had to undergo surgery to clear her bile ducts.

Diagnosed with biliary atresia at only two weeks old and receiving his first surgery at three and a half weeks, Nick ultimately needed a liver transplant when he entered adolescence.

Our son Andrew was born September 30, 2013 with a genetic liver disease called Alagille Syndrome. At 8 days old we started seeing a liver specialist at Children’s of Alabama.

The doctor called and advised her that he suspected Biliary Atresia. He explained that it is a rare, life-threatening disease that affects the liver in newborns.

Tom signed up to join a Run For Research Team and compete in the Boston Marathon. This is where he met Zac Rue, a little boy living with Biliary Atresia.