Patient Stories

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A Positive Role Model for All
June 1, 2023

As a young man, I didn’t want people to think I was perpetually sick; and I wasn’t going to let liver disease define me.

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Carter B.
January 31, 2023

Like many newborns, Carter was born slightly jaundice. A few weeks after leaving the hospital, Carter began to develop bilateral inguinal hernias – something that would soon be a blessing in disguise.

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Tessa’s Story
December 15, 2021

I was born with Biliary Atresia. I was dealt an unfair hand but have never viewed it that way and because of that I am the person I am today.

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Ben’s Story
December 15, 2021

This staff assistant is a member of the U.S. House of Representatives and also has the beginnings of a disease that killed his father: non-alcoholic fatty liver disease (NAFLD).

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Audrey’s Story
December 15, 2021

I’ll never forget the look on the resident’s face when she entered our hospital room with the attending physician. At that moment we were informed our perfect baby had Biliary Atresia.

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Shantalea J.
November 3, 2021

As an infant I was diagnosed with Biliary Atresia, underwent the Kasai procedure, and had my gallbladder removed.

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Raphael K.
June 28, 2021

I was born with the liver disease known as Biliary Atresia. My parent’s first suspected something was wrong when they noticed that my skin and eyes were yellowing.

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Carley V: Blog Introduction
April 20, 2021

I currently manage a chronic liver disease called Autoimmune Hepatitis. At the age of 12 I fell into complete liver failure and was rushed to Egleston Children’s Hospital in Atlanta.

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January 5, 2021

After weeks of tests, we finally received a diagnosis… Biliary Atresia. Molly’s surgeon shed tears with us as she delivered this heartbreaking news.

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Penelope L.
October 28, 2020

We were then introduced by a pediatric GI specialist to a disease named Biliary Atresia. We were told the only way to save OUR baby girl was going through a Kasai Procedure.

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John H.
October 23, 2020

I was diagnosed with Biliary Atresia at around 6-months-old. I was put on the transplant list, and received my new liver on January 14, 1983.

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Elaina R.
October 13, 2020

Elaina was diagnosed with Biliary Atresia at two weeks old and had her Kasai procedure done at three weeks old.

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