Patient Stories

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Heidi A. – Biliary Atresia Video
April 28, 2020

Heidi shares her story and personal experiences about Biliary Atresia.

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Heather C. – Biliary Atresia Video
April 28, 2020

Heather shares her story and personal experiences about Biliary Atresia.

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Tigerlily W.
April 20, 2020

When Tigerlily White of Falmouth needed a liver transplant, her mother, Crystal, donated part of her own liver. Crystal raised money for ALF by running the Boston Marathon.

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Annistyn K.
April 20, 2020

Annistyn Kate was diagnosed with a rare liver disease called Biliary Atresia (BA). At 2 months old, her mom, was told that she needed a major operation called a Kasai procedure.

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Tran T.
April 20, 2020

Our child was born jaundiced and has been continuously testing for his jaundice for 50 days. After 50 days, he had a surgery where the doctor found out that he has biliary atresia.

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Josh D.
April 20, 2020

Josh was diagnosed with a rare liver disease. His parents, humanitarian workers, faced their fair share of challenges, but nothing could have prepared them for this fight to save their child.

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Jax S.
April 20, 2020

I was born with biliary atresia, a liver disease that occurs because there is a blockage in the ducts that carry bile from the liver to the gallbladder.

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Hannah S.
April 20, 2020

It was determined she didn’t have bile ducts to drain her liver. This disease is called Biliary Atresia, they then proceeded to do a Kasi procedure.

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Gavin S.
April 20, 2020

Gavin was jaundiced at birth. Not an entirely uncommon occurrence in newborns, so his pediatrician sent him home after the normal two days in the hospital with out serious concerns.

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Dustin Y.
April 20, 2020

At about 2 weeks old I was diagnosed with Biliary Atresia and almost immediately underwent a Kasai Procedure to correct the problem.

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Domenic F.
April 20, 2020

When I was born I was diagnosed with Biliary Atresia. For the next decade of my life I was in and out of the hospital plagued by jaundice and other complications from my disease.

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Kristen H.
April 20, 2020

Cooper initially was in intensive care. Then he was diagnosed with Biliary Atresia. He underwent a Kasai procedure so that bile could drain into his intestine.

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