Patient Stories

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Jessica’s Story
April 18, 2022

AVID ADVOCATE AND VIVACIOUS VOLUNTEER Jess became involved with the American Liver Foundation (ALF) after being diagnosed with Primary Biliary Cholangitis (PBC) in […]

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Michael P.
April 16, 2022

I had Hepatitis C which had been dormant for years. Fortunately a liver biopsy showed that the liver had not yet been seriously affected.

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Kaila’s Story
April 15, 2022

Kaila became involved with the American Liver Foundation (ALF) in 2017 after her friend, Courtney, was diagnosed with liver cancer.

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Anne’s Story
April 5, 2022

In January 2017, Anne was diagnosed with end-stage liver disease. Over the next two months, she experienced several hospitalizations, multiple side effects and of course, tremendous worry.

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Casey’s Story
March 31, 2022

Casey’s pediatrician referred her to a liver specialist and after multiple tests, she was diagnosed with Wilson Disease.

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Sydney’s Story
March 31, 2022

At age 12, Sydney Sullivan learned she had a serious liver disease that would ultimately lead to a liver transplant.

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Mackenzie’s Story
January 28, 2022

My parents were on the next flight to Austin and I was trying to understand how I went from a healthy, 26 year old to being consulted by the hepatic transplant team in the hospital.

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David’s Story
January 18, 2022

David is a two-time liver transplant recipient. In 1997, he received a liver, and in 2007 he received the liver and kidney.

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Tessa’s Story
December 15, 2021

I was born with Biliary Atresia. I was dealt an unfair hand but have never viewed it that way and because of that I am the person I am today.

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Kenneth’s Story
December 15, 2021

Ascites American Liver Foundation patient advocate Kenneth shares his story about living with ascites. Last updated on August 3rd, 2022 at […]

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Ben’s Story
December 15, 2021

This staff assistant is a member of the U.S. House of Representatives and also has the beginnings of a disease that killed his father: non-alcoholic fatty liver disease (NAFLD).

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Barb’s Story
December 15, 2021

The American Liver Foundation presents this compelling story of patient Barb Pitts who was diagnosed with liver cancer. This interview is for those who seek to understand more about liver cancer.

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