Massachusetts State Resource Center
Our Mission
ALF promotes education, advocacy, support services and research for the prevention, treatment and cure of liver disease. ALF Mid-Atlantic provides a wide variety of these services including information and referral, education programs, support groups, exciting fundraising events, and an array of volunteer opportunities.
For help with issues related to liver disease, please contact our Help Center by using the Live Chat feature at the bottom of your browser window or call us at (800) 465-4837 Monday through Friday 9 am to 5 pm Eastern Time or by email at info@liverfoundation.org.
COVID-19
Mass.gov Information on the Outbreak of COVID-19
Support Groups
Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.
Not all support groups are facilitated by an American Liver Foundation volunteer. Some support groups are facilitated by 3rd party organizations and individuals in this region. Some support groups may no longer be active and have not informed us; if you are aware of additional support groups in New England or groups which no longer meet, please e-mail us to let us know.
Brockton
Anonymous Hepatitis C Support Group
COPE Center
81 Pleasant Street
Brockton, MA
Meets: Last Tuesday of the month, 7:00pm-8:30pm
Phone: (508) 583-3405
Email: cope@bamsi.org
Boston
C is for Cure: Hepatitis C Support Group
Father Mychal Judge Recovery Center
St. Anthony Shrine
100 Arch Street
Boston, MA 02110
This is an American Liver Foundation sponsored Support Group providing answers to questions about testing, treatment, and where to turn for help.
Meets: Last Wednesday of the Month at 5:30 p.m.
Phone: 781-526-3679
Contact Anthony for more information.
Burlington
Hepatitis C & Liver Disease Support Group
Lahey Hospital and Medical Center Transplant Support Groups
41 Mall Road
4 West Conference Room
Burlington, MA
This group is open to pre and post-transplant patients, family, and caregivers as well. Please note, there is no group held in August.
Ongoing drop-in virtual groups (via Zoom) that will explore pre and post-transplant themes from a psychosocial perspective, provide emotional support, peer connection, and guidance coping with the transplant process led by a licensed independent clinical social worker.
Date: Third Thursday of every month from 12-1 pm
For more information contact Kayla Hulburt, LISCW 781-744-2500
Cambridge
Hepatitis C Support Group
AIDS Action Committee
359 Green Street
Cambridge, MA 02139
Lunch is offered during this support group. Attendees are invited to arrive at 12:30 for lunch. The meeting begins at 1 pm.
Meets: 1st Wednesday of the month, 1-2:30
Phone: 617-599-0225
Web: https://aac.org/
Contact Luis (AIDS Action Committee) for more information.
Gloucester
Hepatitis C Support Group
North Shore Health Project
67 Middle Street
Gloucester, MA 02930
Meets: 2nd Saturday of month, 10-11:30am
Phone: (978) 283-0101
Web: www.healthproject.org
Contact Jason for more information.
Clinical Trials
Find a Clinical Trial anywhere…
Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.
Boston
A Phase 2, Open-Label, Multicenter, Multi-cohort Study to Investigate the Safety and Efficacy of Sofosbuvir/Velpatasvir in Adolescents and Children
Boston Children’s Hospital
- All genotypes
- Expect enrollment to start with 12-17 year olds by late winter/early spring 2017
Contact Courtney Glavin for more information.
Phone: 617-355-8350
An Open-Label, Multicenter Study to Evaluate the Pharmacokinetics, Safety, and Efficacy of Glecaprevir/Pibrentasvir in Pediatric Subjects with Genotype
Boston Children’s Hospital
- All genotypes
- Expect enrollment with 12/17 year olds by late winter/early spring 2017
Contact Denis Nguyen for more information.
Phone: 617-355-0530
An Open-Label, Multicenter, Study to Evaluate the Pharmacokinetics, Safety and Efficacy of OBV, PTV, RTV with or without DSV and with or without RBV i
Boston Children’s Hospital
- Currently enrolling patients 9-11yo
- Expect to enroll 8-10yo by spring/summer 2017
Contact Denis Nguyen for more information.
Phone: 617-355-0530
Phone: 617-724-3836
Email: LiverResearchGroup@partners.org
Massachusetts General Hospital
MGH has a few in the pipeline that they anticipate to be starting in the next 3-4 months (mainly NASH and HCV). In terms of MGH trials – the LiverResearchGroup@partners.org is a great contact to give out if people are just looking to hear more about what’s available, etc.
* Intercept – drug Obeticholic Acid (ClinicalTrials.gov Identifier: NCT02548351)
Population: NASH + Fibrosis stage 1-3
Study Phase: 3
Treatment period: up to 5 years (interim analysis at 18 months)
Randomization: 1:1:1 (placebo/10mg/25mg)
* Genfit – drug Elafibranor
Population: NASH + Fibrosis (stage 1-4)
Treatment period: 72 weeks with long term treatment rollover (up to 4 additional years)
Study Phase: 3
Randomization: 2:1 (120mcg/placebo)
* Conatus12 – drug Emricasan (ClinicalTrials.gov Identifier: NCT02686762)
Population: NASH + Fibrosis stage 1-3
Treatment period: 72 weeks + 4 weeks follow-up
Study Phase: 2
Randomization: 1:1:1 (placebo/5mg/50mg)
* Novartis – drug LJN452 (ClinicalTrials.gov Identifier: NCT02855164)
Population: NASH + Fibrosis (stage 1-3)
Treatment period: 12 weeks
Study Phase: 2
Randomization: Part A: 1:1:1:1:1 (10mg/30mg/60mg/90mg/placebo)
NASH Cirrhosis
* Conatus14 – Emricasan (ClinicalTrials.gov Identifier: NCT02960204)
Population: NASH + Cirrhosis + Severe Portal Hypertension (HVPG > 12)
Treatment period: 24 weeks
Study Phase: 2
Randomization: 1:1:1:1 (placebo/5mg/25mg/50mg)
HCV
* Gilead – drug Harvoni (ClinicalTrials.gov Identifier: NCT02503735)
Population: Chronic Kidney Disease + HCV
Treatment period: 12 weeks
Study Phase: 4
Randomization: open label (no placebo)
* AbbVie – drug Viekira Pak (ClinicalTrials.gov Identifier: NCT02946034)
Population: Chronic Kidney Disease + HCV
Treatment period: 12 weeks
Study Phase: 4
Randomization: open label (no placebo)
Contact JLGustafson@partners.org (MGH Liver Research Group) for more information.
Phone: 617-724-3836
Email: LiverResearchGroup@partners.org
Worcester
UMass Memorial Medical Center
University of Massachusetts Medical School
55 Lake Avenue North HA.382
Worcester, MA 01655-0002 USA
Severe Alcoholic Hepatitis
* Gilead Sciences: ASK1 Inhibitor + prednisolone vs prednisolone alone
* NIAAA: Anakinra/Pentoxyfilline/Zinc (has treatment as well as observational arms)
NASH (non-cirrhosis)
* Intercept: obetacholic acid
* Genfit: elafibranor
* 2 additional studies for NASH expected to open within the next few weeks.
HCV
* U of Florida/U of NC Chapel Hill: Longitudinal, observational study with patients being treated for approved HCV
Contact Monique Rinner, RN MBA, Research Nurse Coordinator (Department of Medicine, Division of Gastroenterology) for more information.
Phone: 774 442-1982
Email: monique.rinner@umassmemorial.org
Related Links
In addition to the resources listed above in your state or district, ALF provides these resources that are available no matter where you are. Explore them now…
Last updated on June 26th, 2024 at 11:19 am