Your Story Can Change the Future of Liver Health

More than 100 million Americans are living with some form of liver disease. Many don’t even know they have it until it’s too late — when the damage is irreversible and their options are limited. Liver disease is one of the fastest-growing public health crises in our nation, and without urgent action, the toll will keep rising.

This is not just about numbers. It’s about you, your neighbors, friends, parents, children- people we love.

Why This Matters Right Now

From newborns to older adults, liver health is under threat and this summer we’re focusing on three key areas that urgently need your help: obesity and metabolic dysfunction-associated steatotic liver disease (MASLD), living organ donors, and protecting newborns from hepatitis. MASLD, formerly known as non-alcoholic fatty liver disease (NAFLD), is present in 90% of those who are obese and 75% of those who are overweight, and it can progress to liver failure or cancer. Although obesity is a leading driver of MASLD Medicare beneficiaries face barriers to the treatments they need. Nearly 9,300 people are waiting for a liver transplant, 25% of whom will die waiting. Yet living donors still face unnecessary legal and insurance barriers. The hepatitis B birth dose has reduced childhood hepatitis B infections by 95%, yet access is at risk.

What we’re asking Congress and the Centers for Medicare and Medicaid Services (CMS) to do:

• Pass the Treat and Reduce Obesity Act (TROA) to expand Medicare coverage for obesity care, including FDA-approved medications and counseling by specialized providers.
• Urge CMS to use their regulatory authority to allow access for the full continuum of care for obesity. Or include coverage for obesity care in future rule making.
• Pass the Living Donor Protection Act (LDPA) to protect organ donors from insurance discrimination and expand access to transplantation.
• Safeguard universal hepatitis B vaccination at birth to protect newborns from a preventable, deadly disease.

Why Your Story Is the Key

Statistics open eyes — but your story opens hearts. When lawmakers hear directly from the people they represent, it puts a face on the policies they vote on. Whether liver disease has touched your life, your family, or your community, your voice matters. Even if you’ve never written to Congress before, this is your chance to make a difference. Our action tool makes it simple:

1. Start with our letter template.
2. Add your story — why this matters to you.
3. Click send. Your message will go to both of your Senators, your Representative, and key leaders at CMS in one click.

While You’re Here — 10 Seconds, Big Impact

In addition to sharing your story, you can help drive meaningful change for liver patients by taking quick actions on other urgent priorities:

• Support access to hepatitis B vaccination for all newborns.
• Protect living organ donors from insurance discrimination.
• Expand access to obesity treatment and prevention.
• Tell CMS to expand access to AOMs under Medicare Part D.

Each action takes less than 10 seconds — but together, they help shape a future where liver patients have the care and protection they deserve.