Patient Stories

Penelope L.
October 28, 2020

We were then introduced by a pediatric GI specialist to a disease named Biliary Atresia. We were told the only way to save OUR baby girl was going through a Kasai Procedure.

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John H.
October 23, 2020

I was diagnosed with Biliary Atresia at around 6-months-old. I was put on the transplant list, and received my new liver on January 14, 1983.

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Dan M.
October 21, 2020

A medical team at New York Columbia Presbyterian Hospital conducted its first living donor liver transplant surgery on Kevin, my younger brother. I was the living donor.

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Georgina F.
October 16, 2020

I was first diagnosed with Hepatitis C on October 16, 2019. I was lost and confused. I had no idea what I was dealing with.

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Elaina R.
October 13, 2020

Elaina was diagnosed with Biliary Atresia at two weeks old and had her Kasai procedure done at three weeks old.

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Julia N.
October 13, 2020

Like most people, I had never heard of this disease before but it all changed when my daughter, Julia, was diagnosed with Biliary Atresia in the fall of 2017 at just 3 months old.

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Peggy R.
October 6, 2020

I was diagnosed with Hepatitis C in 1993. I tried multiple treatment plans back then and nothing worked. My disease continued to ravage my liver, causing so many problems.

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Evan P.
October 2, 2020

Evan received his gift of life on May 21st, 2020 during a 10 hour transplant surgery. He was first diagnosed at 18 months old with PFIC-3, a hereditary liver disease, which for years had been treated.

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Kim C.
September 29, 2020

Combined with end stage liver disease, which I also had, the condition can deteriorate quickly and become life threatening.

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Robert F.
September 22, 2020

You have to stay positive at all times. Family and friends are the key to helping you through the rough times. Follow the directions from your medical care team. Be compliant.

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Lillian H.
September 18, 2020

Lillian had a Kasai procedure to attempt to create an artificial bile flow. When that failed, she was listed for transplant.

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Heather K.
September 16, 2020

I was diagnosed a couple weeks before my birthday with Stage 4 liver disease. I was more specifically told that I had Autoimmune Hepatitis and that I desperately need a new liver.

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