Patient Stories

A biopsy of my liver revealed that I was suffering from PBC. I was given medication to help slow the progression of the disease.

On Mother’s Day weekend, I was diagnosed with breast cancer. Leading up to my double mastectomy, I had to have a series of blood work done. That’s where they discovered my elevated liver enzymes.

As an infant I was diagnosed with Biliary Atresia, underwent the Kasai procedure, and had my gallbladder removed.

My liver was in trouble. I learned that the ducts from the liver that deliver bile to the intestines had become damaged. There was a good possibility my liver would eventually fail.

I was admitted to the local hospital for bleeding varices. I underwent surgery to stop the bleeding and was told I could possibly get a liver within the next few days.

I was born with the liver disease known as Biliary Atresia. My parent’s first suspected something was wrong when they noticed that my skin and eyes were yellowing.

I had difficulty with my memory and I began to experience loss of appetite, lethargy and difficulty concentrating. All the symptoms that I know now to be of liver failure.

Ten years earlier, Jack was diagnosed with alpha-1 antitrypsin deficiency, an inherited disorder that can ultimately lead to liver failure.

I currently manage a chronic liver disease called Autoimmune Hepatitis. At the age of 12 I fell into complete liver failure and was rushed to Egleston Children’s Hospital in Atlanta.

Michaela Layton was diagnosed at age 17 with Wilson Disease, a rare genetic disease that causes copper buildup in the liver.

After receiving an AIP (Acute Intermittent Porphyria) diagnosis at age 16, Heather struggled for years to manage her symptoms, experiencing multiple attacks a year.

Never would have thought I would have liver disease. I began my journey with liver disease in 2011 and despite ongoing treatments and medication, I ended up being hospitalized in May of 2012.