Patient Stories

Her liver enzymes came back elevated. The nurse practitioner wanted Paysen to see a pediatric gastroenterologist.

We were then introduced by a pediatric GI specialist to a disease named Biliary Atresia. We were told the only way to save OUR baby girl was going through a Kasai Procedure.

I was diagnosed with Biliary Atresia at around 6-months-old. I was put on the transplant list, and received my new liver on January 14, 1983.

A medical team at New York Columbia Presbyterian Hospital conducted its first living donor liver transplant surgery on Kevin, my younger brother. I was the living donor.

I was first diagnosed with Hepatitis C on October 16, 2019. I was lost and confused. I had no idea what I was dealing with.

Elaina was diagnosed with Biliary Atresia at two weeks old and had her Kasai procedure done at three weeks old.

Like most people, I had never heard of this disease before but it all changed when my daughter, Julia, was diagnosed with Biliary Atresia in the fall of 2017 at just 3 months old.

I was diagnosed with Hepatitis C in 1993. I tried multiple treatment plans back then and nothing worked. My disease continued to ravage my liver, causing so many problems.

Evan received his gift of life on May 21st, 2020 during a 10 hour transplant surgery. He was first diagnosed at 18 months old with PFIC-3, a hereditary liver disease, which for years had been treated.

Combined with end stage liver disease, which I also had, the condition can deteriorate quickly and become life threatening.

You have to stay positive at all times. Family and friends are the key to helping you through the rough times. Follow the directions from your medical care team. Be compliant.

Lillian had a Kasai procedure to attempt to create an artificial bile flow. When that failed, she was listed for transplant.