Patient Stories

After a successful and long career in the U.S. Army and U.S. Government Department of Defense, Terry L. Martin, Sr. was diagnosed with Sarcoidosis (an inflammatory disease) in his lungs and liver.

The doctor called and advised her that he suspected Biliary Atresia. He explained that it is a rare, life-threatening disease that affects the liver in newborns.

I was diagnosed with liver disease on my birthday. After several tests I was told that after changing my lifestyle by losing weight and eating healthy I would probably be alright.

Waking up in the ICU after 2.5 days in a medically induced coma initiated by massive internal bleeding was a shocking almost out-of- body type of experience.

I was diagnosed one year ago after going into acute liver failure. I found out that I have ESLD and HE.

I was diagnosed after elevated LFT’s. One day I awoke with horrific itch, head to toe. The doctor I saw ran an AMA2 test and sure enough, PBC.

I was a young mother, I had two kids, my dad had recently died, and I had a bad cold that would just not clear up. I was so exhausted. Ultimately I was diagnosed with PBC.

No matter what I did or how I felt, the color just wasn’t normal. After months of questions and tests, I was diagnosed with autoimmune hepatitis.

Tom signed up to join a Run For Research Team and compete in the Boston Marathon. This is where he met Zac Rue, a little boy living with Biliary Atresia.

Acetaminophen, a pain-reliever and fever-reducer, is safe and effective when used as directed, but taking more than the recommended dose can lead to liver damage and death.

At only 3 ½ years old, Aiden has been hospitalized at least 10 times, had countless doctor visits and has undergone two liver transplants.