Paula’s Story

Primary Biliary Cholangitis

My name is Paula I am 55 years old a mother of 3 adult children grandmother of 4. In 2000 I was due to deliver my 3rd child when routine blood work indicated my liver panel levels were abnormal. The doctor then asked a series of questions and wanted to know my family history as well as my personal history.

Once I delivered I became very ill with body aches, swollen hands and feet and severe abdominal pain. My postnatal testing suggested autoimmune hepatitis and lupus. I was then referred to a Gastroenterologist and Rheumatologist who ordered additional testing. In 2001 a biopsy of my liver revealed that I was suffering from PBC. I was given medication to help slow the progression of the disease.

By 2017 my health declined and I was hit again with body aches, joint pain, extreme fatigue, constant itching and periodic brain fog. My Gastroenterologist ordered another biopsy which confirmed my disease progressed to stages 3 and 4. Currently my symptoms have intensified with severe leg cramps, chronic fatigue, loss of appetite, daily bouts of nausea, with continuous itching and insomnia, portal hypertension and vascular congestion. I have been placed on the transplant list for the last 3 years. On my own I have petitioned for a donor through family and friends. As of today no donor. Sad but very true!

Paula suggests to all “Be strong and very courageous. Don’t be afraid do not be discouraged, for the Lord God will be with you wherever you go.”

Last updated on July 11th, 2022 at 04:10 pm