Patient Stories

The doctor called and advised her that he suspected Biliary Atresia. He explained that it is a rare, life-threatening disease that affects the liver in newborns.

I was diagnosed with liver disease on my birthday. After several tests I was told that after changing my lifestyle by losing weight and eating healthy I would probably be alright.

Waking up in the ICU after 2.5 days in a medically induced coma initiated by massive internal bleeding was a shocking almost out-of- body type of experience.

I was diagnosed one year ago after going into acute liver failure. I found out that I have ESLD and HE.

I was diagnosed after elevated LFT’s. One day I awoke with horrific itch, head to toe. The doctor I saw ran an AMA2 test and sure enough, PBC.

I was a young mother, I had two kids, my dad had recently died, and I had a bad cold that would just not clear up. I was so exhausted. Ultimately I was diagnosed with PBC.

No matter what I did or how I felt, the color just wasn’t normal. After months of questions and tests, I was diagnosed with autoimmune hepatitis.

Tom signed up to join a Run For Research Team and compete in the Boston Marathon. This is where he met Zac Rue, a little boy living with Biliary Atresia.

Acetaminophen, a pain-reliever and fever-reducer, is safe and effective when used as directed, but taking more than the recommended dose can lead to liver damage and death.

At only 3 ½ years old, Aiden has been hospitalized at least 10 times, had countless doctor visits and has undergone two liver transplants.