Patient Stories

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Lacey N.
March 2, 2020

I never knew the importance of keeping your liver happy and making sure that proper diet was important until I had this rare liver disorder called Budd Chiari.

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Avani’s NASH Story
October 15, 2019

Avani shares her story and feelings after having been diagnosed with nonalcoholic steatohepatitis.

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Terry
July 2, 2019

After a successful and long career in the U.S. Army and U.S. Government Department of Defense, Terry L. Martin, Sr. was diagnosed with Sarcoidosis (an inflammatory disease) in his lungs and liver.

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Aiden
April 20, 2019

The doctor called and advised her that he suspected Biliary Atresia. He explained that it is a rare, life-threatening disease that affects the liver in newborns.

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Greg H.
September 19, 2018

I was diagnosed with liver disease on my birthday. After several tests I was told that after changing my lifestyle by losing weight and eating healthy I would probably be alright.

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Amy P.
June 12, 2018

Waking up in the ICU after 2.5 days in a medically induced coma initiated by massive internal bleeding was a shocking almost out-of- body type of experience.

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Jenny P.
May 30, 2018

I was diagnosed one year ago after going into acute liver failure. I found out that I have ESLD and HE.

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Cathy K.
March 15, 2018

I was diagnosed after elevated LFT’s. One day I awoke with horrific itch, head to toe. The doctor I saw ran an AMA2 test and sure enough, PBC.

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Carolyn E.
March 15, 2018

I was a young mother, I had two kids, my dad had recently died, and I had a bad cold that would just not clear up. I was so exhausted. Ultimately I was diagnosed with PBC.

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Amanda P.
February 2, 2018

No matter what I did or how I felt, the color just wasn’t normal. After months of questions and tests, I was diagnosed with autoimmune hepatitis.

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Tom N.
November 14, 2017

Tom signed up to join a Run For Research Team and compete in the Boston Marathon. This is where he met Zac Rue, a little boy living with Biliary Atresia.

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Justin B.
November 2, 2017

Acetaminophen, a pain-reliever and fever-reducer, is safe and effective when used as directed, but taking more than the recommended dose can lead to liver damage and death.

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