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Having a rare liver disease can be tough for anyone, especially a child

Meet Mya Longacre, an ALF patient volunteer who has been navigating her journey with liver disease since birth.

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What is the Damage to the Liver with Fatty Liver? Is it Reversible?

This presentation is an excerpt from the ALF 2021 Poster Competition and showcases posters and a brief video created by early career investigators.

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Liver Awareness Month: Cirrhosis

Cirrhosis is where your liver is severely scarred and permanently damaged. Cirrhosis is caused by many forms of liver disease.

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5 Facts About Liver Disease

There are so many different types of liver diseases. Here are a few quick and important facts we think everyone needs to know about liver disease.

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Pediatric Fatty Liver Disease

NAFLD is the most common liver disease in the United States. It is thought to affect approximately 30 million people, 8.6 million of whom have the more severe form of the disease, NASH.

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Galactosemia

Galactosemia is an accumulation of galactose in the blood that can cause serious complications like an enlarged liver, kidney failure, cataracts in the eyes or brain damage.

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Glycogen Storage Disease Type 1 (von Gierke)

It is an inherited disorder that affects the metabolism – the way the body breaks food down into energy.

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Parents

Learn the causes of liver failure in children, what to do if your child is diagnosed, and hear from families facing some of the same ups and downs.

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PFIC. Rare Disease. Real Lives.

Michelle had a successful liver transplant at 12 years old. She is currently 30 and working part-time. She says, “I feel good but get really tired. I have to remind myself to listen to by body and not overdo it” PFIC is starting to cause some scarring on Michelle’s transplanted liver but she keeps a positive mindset, “It isn’t bad. At least we know what’s causing it so we can manage it.”

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NASH Diagnosis

Fatty liver disease is often discovered during routine blood tests for other medical conditions. Your blood work may show high levels of liver enzymes, or ultrasounds might reveal your liver is enlarged.

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Hemochromatosis

Hemochromatosis is an inherited condition in which the body absorbs and stores too much iron that builds up in several organs, especially the liver, and can cause serious damage.

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Lysosomal Acid Lipase Deficiency (LALD)

Lysosomal acid lipase deficiency affects the body’s ability to produce this enzyme needed to breakdown fat and cholesterol. When LAL is missing, fats accumulate and lead to liver and heart disease.

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