Patient Stories

Some of you may already know, today I embark on my most testing journey ever taken, the process of getting placed on the USA organ transplant list – I need a liver.

I’m Becky and I was diagnosed with NASH and was put on the transplant list in 2011. Later in my journey I was officially diagnosed with Cryptogenic Cirrhosis.

Have you ever participated in a Liver Life Walk? If so you may have found yourself walking alongside Art Clark who has been on an 8-year journey as a liver transplant patient/survivor.

Anoura was born on Thanksgiving in 2015. She was a very healthy baby until her skin became yellow and her stool became chalky.

I am responding with my experience with HE as I was a caregiver for my brother, Javier Nunez, who passed away 8/8/11 due to a brain hemorrhage 3 days after transplant.

I began to cut the grass on the greens, and enjoyed this greatly, but I just didn’t feel right. I felt very weak, slow and forgetful, certainly not normal. I was diagnosed with liver disease.

I walked in my first Liver Life Walk just 6 weeks post-transplant. I was diagnosed with liver disease in February of 2010, after being sick for about 2 years.

John is dedicated to helping others living with hepatitis C. A Vietnam veteran and retired New York City firefighter, he was diagnosed with hepatitis C in 1994.

Some friends would give you the shirts off their backs. Others would give you the lobes of their livers. That is just what John did when his best friend’s brother needed a liver transplant.

In 2005 I was diagnosed with autoimmune hepatitis and later with NAFLD. Was also told that I didn’t qualify for a liver transplant.

Emma was a 9 year-old 4th grader when she was diagnosed with Autoimmune Hepatitis. For a year or so before she was diagnosed, she was participating in gymnastics and cheer.

My daughter, Elise, was born in October 2011 with the rare pediatric liver disease, Biliary Atresia. We were told that she would likely require a liver transplant by age 2 in order to survive.