Patient Stories

When Tigerlily White of Falmouth needed a liver transplant, her mother, Crystal, donated part of her own liver. Crystal raised money for ALF by running the Boston Marathon.

Annistyn Kate was diagnosed with a rare liver disease called Biliary Atresia (BA). At 2 months old, her mom, was told that she needed a major operation called a Kasai procedure.

Our child was born jaundiced and has been continuously testing for his jaundice for 50 days. After 50 days, he had a surgery where the doctor found out that he has biliary atresia.

Josh was diagnosed with a rare liver disease. His parents, humanitarian workers, faced their fair share of challenges, but nothing could have prepared them for this fight to save their child.

When I was 11, I was diagnosed with PSC and told I’d one day need a transplant. For ten years after that diagnosis I was relatively healthy but still listed for a transplant.

When Jordan was 16, he was diagnosed with Primary Sclerosing Cholangitis (PSC) and although he strived to keep his dream alive, he suffered from major infectious attacks from his disease.

Joey was a beautiful energetic 2 year old when liver failure claimed her life.

My husband was diagnosed with Primary Sclerosing Cholangitis (PSC). PSC is a Chronic liver disease where the biliary system of the liver suffer chronic inflammation.

I was born with biliary atresia, a liver disease that occurs because there is a blockage in the ducts that carry bile from the liver to the gallbladder.

It was determined she didn’t have bile ducts to drain her liver. This disease is called Biliary Atresia, they then proceeded to do a Kasi procedure.

Gretta is thankful for her diabetes. Because of her condition, doctors were able to diagnose her liver cancer at a very early stage.

Gavin was jaundiced at birth. Not an entirely uncommon occurrence in newborns, so his pediatrician sent him home after the normal two days in the hospital with out serious concerns.