Patient Stories

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Leonard S.
April 20, 2020

His medical and transplant teams spent the next three months stabilizing Leonard’s condition so he could receive a liver transplant. Prolonged use of OTC medications had damaged his liver.

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Kristen H.
April 20, 2020

Cooper initially was in intensive care. Then he was diagnosed with Biliary Atresia. He underwent a Kasai procedure so that bile could drain into his intestine.

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Nick G.
April 20, 2020

Nick’s grandfather had died of liver disease he thought that teaming up with ALF would be a great way to honor his grandfather’s memory.

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Natalie Williams
April 20, 2020

After many visits to the family doctor I was finally referred to a specialist and was diagnosed with Biliary Atresia at 9 weeks old.

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Millie T.
April 20, 2020

I was born with BA and had two surgeries before the age of one. I had no idea why I had these scars and went on with life.

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Meiyee C.
April 20, 2020

After taking her to American Family Children’s Hospital in Madison at the beginning of the summer, they learned she had biliary atresia, which meant the bile ducts from her liver were not formed.

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Matt R.
April 20, 2020

Our doctor instantly recognized Matthew’s jaundice as the indication of a possibly serious condition.

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Matt L.
April 20, 2020

He battled cirrhosis of the liver for about 6 months until we found out he had end stage liver failure and his kidneys started to malfunction as well.

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Marlene K.
April 20, 2020

She saw a GI specialist to help her with her illness, and had a nurse who became her advocate in this fight. She was diagnosed with cirrhosis of the liver.

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Pilar C.
April 20, 2020

I was diagnosed with PBC after a year of elevated liver enzymes. I have made an effort to learn all I can about liver disease in general.

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Noel R.
April 20, 2020

When she was just two months old, Noel was diagnosed with a liver disease called Biliary Atresia. Her parents were devastated when she had to undergo surgery to clear her bile ducts.

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Nick W.
April 20, 2020

Diagnosed with biliary atresia at only two weeks old and receiving his first surgery at three and a half weeks, Nick ultimately needed a liver transplant when he entered adolescence.

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