Explore these free, online support resources to help you as you navigate your liver health journey. If you are searching for local or in-person support groups, visit the State Resources section of our Resource Center.

ALF Support Groups

Life with Pediatric Liver Disease Support Group on Facebook

This is the American Liver Foundation's supportive community for those affected by Biliary Atresia (BA) . It is open to anyone connected to BA around the country. This community serves as a space to feel less alone, seek answers to your questions and find the strength for another day. Join the group today!

Life with Alcohol-Associated Liver Disease Facebook Support Group

This is the American Liver Foundation's supportive community for those affected by Alcohol Associated Liver Disease (ALD) The group is open to anyone living with this disease or any family members/caregivers of someone affected by it. This caring group serves as a non-judgmental space to seek and share experiences with other liver patients, families and caregivers while receiving guidance from professionals trained in substance use disorders and liver disease. Join the group today!

Liver Cancer Support Group on Facebook

This is the American Liver Foundation's supportive community for those affected by Liver Cancer. It is open to anyone connected to liver cancer around the country. This community serves as a space to feel less alone, seek answers to your questions and find the strength for another day. Join the group today!

NASH (now called MASH) Support Group on Facebook

This is the American Liver Foundation's supportive community for those affected by Nonalcoholic Steatohepatitis (NASH), now called metabolic dysfunction associated steatohepatitis or MASH. It is open to anyone connected to NASH (now called MASH) around the country. This community serves as a space to feel less alone, seek answers to your questions and find the strength for another day. Join the group today!

PBC Support Group on Facebook

This is the American Liver Foundation's supportive online community for those affected by PBC. This community serves as a space to feel less alone, seek answers to your questions and find the strength for another day. Open only to liver patients with PBC, join this group today!

Sharing the Journey, an ALF support network for caregivers

The American Liver Foundation offers this support network for people who are caregivers for loved ones with liver disease or who have had or need liver transplants.

All sessions will be facilitated by a licensed social worker. You must be aged 18 or older to participate. There is no fee to join.

Sharing the Journey, an ALF support network for liver transplant recipients

Sharing the Journey, an ALF support network for liver transplant recipients, provides an opportunity for you to connect with other transplant recipients. Through this group, you will be able to offer and receive support through the shared transplant experience.

All sessions will be facilitated by a licensed social worker. You must be aged 18 or older to participate. There is no fee to join.

Sharing the Journey, an ALF support network for patients

The American Liver Foundation offers this support network for people who have been diagnosed with liver disease and those who are awaiting liver transplant.

A licensed social worker will facilitate all sessions. There is no fee to participate. You must be aged 18 or older to join.

ALF Online Support Group on Inspire

The ALF Inspire community offers liver disease patients and caregivers a safe place to connect anonymously to share support, tips, and resources around alcohol-associated liver disease, HE, PBC/PSC, Hepatitis C, liver cancer, liver transplants, and more.

Other Online Support Groups

AcariaHealth Hepatitis C

Meets: Various Times Online (Listed below)

Be a part of these one of a kind group discussions regarding
Hepatitis C therapies!

Upcoming Sessions:

First Timers (for treatment naïve patients)
First Thursday of each month at 9pm EST

Give it Another Go (for treatment experienced patients)
Second Thursday of each month at 12pm EST

One Day at a Time (for patients on active treatment)
Third Thursday of each month at 12pm EST

What Can I Do About…? (for patients seeking help with side
effect management)
Fourth Thursday* of each month at 9pm EST
*Nov. and Dec. sessions will be held on the third Thursday due to the Holidays

Contact Barbara Morgan, RN for more information.

Phone: (800) 511-5144 Ext. 1033
Email: barbara.morgan@acariahealth.com

Mayo Clinic Transplant Support Group

Mayo Clinic Connect is an online community where you can share your experiences and find support from people like you. You can also read expert blogs and take part in educational events. Join the transplant discussion group where you can meet people living with a transplant, waiting for a transplant or serving as caregivers.

Medstar Georgetown Transplant Institute Liver Transplant Support Group

Please note that all meetings will be held virtually via Zoom until further notice.

Audience: Liver patients can share their transplant experiences and ask questions. All adult patients, families, and caregivers are welcome to join.

Why: The transplant process is both mentally and physically draining. Meeting others who are in a similar situation can be helpful and motivating.

When: Usually the third week, alternating between Mondays and Thursdays, 5:30 – 6:30 p.m.

Contact: Monica Hanza, MSW, LGSW
Phone: 202-444-0439
E-mail: Monica.D.Hanza@medstar.net

PBC Digest

The Primary Billiary Cirrhosis Organization aka PBCers is a wonderful source of support and education for primary biliary cirrhosis (PBC) patients, family members, friends and other autoimmune liver disease patients. Formed in 1996, the PBCers is the largest online PBC support group with almost 3,000 members worldwide.

As a group, we discuss medical information, pain management, medications, research, ask questions, transplantation, vent our anger & fears, speak freely on the ups and downs of daily living, share our personal experiences and build lasting friendships.

Contact Linie Moore, President for more information.

Phone: (346) 302-1620
Web: www.pbcers.org
Email: pbcsite@pbcers.org

Last updated on November 14th, 2024 at 02:11 pm