New York State Resource Center
Our Mission
ALF promotes education, advocacy, support services and research for the prevention, treatment and cure of liver disease. ALF Greater New York provides a wide variety of these services including information and referral, education programs, support groups, exciting fundraising events, and an array of volunteer opportunities.
For help with issues related to liver disease, please contact our Help Center by using the Live Chat feature at the bottom of your browser window or call us at (800) 465-4837 Monday through Friday 9 am to 5 pm Eastern Time or by email at info@liverfoundation.org.
COVID-19
Support Groups in the 5 Boros of New York City
MANHATTAN
Alpha-1 Foundation Support Group – New York / New Jersey
New York, New York
Alpha-1 Foundation has over 80 Support Groups Nationwide for Liver and Lung affected Alphas. Please call for more information, including dates and times for support groups or please check www.alpha1.org
Contact Lori Tartell and Joe Reidy for more information.
Phone: 212-523-5471 (201-444-7839)
Web: http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups
Email: ltartell@chpnet.org
Manhattan HCV Support Group
Lower East Side Harm Reduction Center
25 Allen Street
New York, NY 10002
Meets: Thursdays from 1:00 – 2:00 pm
Phone: 212-226-6333 ext 114
Contact Perla Romero for more information.
Manhattan Hepatitis C Support Group
Mount Sinai Medical Center
Guggenheim Pavilion
1425 Madison Ave (98th St)
Room 1184
New York, NY
Open to all
Meets: Third Wednesday of each month; 6- 7:30 p.m.
Phone: 212-659-8928
Contact Viktoriya Khaitova for more information.
Manhattan HVC Support Group
Positive Health Project
301 West 37th Street
New York, NY 10018
Meets: Every Thursday; 11:00am-12:00pm
Phone: 212-465-8304
Contact Yvette Gonzalez for more information.
Post Transplant Support Group
New York Presbyterian Hospital
Milstein Hospital Building
177 Fort Washington Avenue
7 Hudson South – Reemtsma Conference Room 213
New York, NY
The Post-Transplant Support Group meets twice a month to share experiences, ideas and mutual support for recipients and their families.
Meets: First and Third Thursday of every month; 10:00-11:30AM
Phone: 212-305-1884
Contact Aimee Muth for more information.
Pre-Post Transplant Educational Workshop
New York Presbyterian Hospital/Columbia University Medical Center
Hammer Health Sciences Building
701 W 168th St @ Fort Washington
Lower Level LL-204
New York, NY 10032
For Pre-Post Transplant Patients and their caregivers. Please contact Aimee Muth to confirm your attendance.
Meets: Thursdays from 4:00-5:20pm
Phone: 212-305-1884
Contact Aimee Muth for more information.
Transplant Support Group
The Recanati/Miller Transplantation Institute at Mount Sinai Hospital
One Gustave L. Levy Place
New York, NY 10029
This support group is open to all patients and patient’s family members who are pre or post liver and/or kidney transplantation. Entrance on 1468 Madison Ave.; (100th St. and Madison Ave.); Guggenheim Pavillion; Floor: 9 Center, Patient Lounge
Meets: Thursdays 1pm
Phone: (212) 241-7944
New York Primary Biliary Cirrhosis Support Group
Mt. Sinai
East Building
1425 Madison Ave
Madison Ave. and corner of 98th St. 11th Floor, Room 1184
New York, NY
“The New Frontier of Liver Disease Treatments” With speaker Dr. Scott Friedman, Chief of the Division of Liver Diseases, Mt. Sinai School of Medicine Sandwiches and beverages will be available. Intercept Pharmaceuticals, Inc. helped fund this meeting. *The support group portion of the meeting is restricted to those with PBC and their invited family/friends.
Meets: Thursday, October 17th, 2019 6:30-7:20 speaker Q & A, 7:30 8:30 pm *Support group
Email: normagoetz1@gmail.com
Contact Norma Goetz for more information.
BROOKLYN
Hepatitis C Support Group
New York Methodist Hospital
Carrington Pavilion entrance
506 Sixth Street (between 7th and 8th Avenues)
Brooklyn, NY
Refreshments will be served.
Meets: 3rd Wednesday of each Month 6:00-7:30 PM
Phone: 718-780-3125
Getting There: Executive Dining Room (next to Hospital Cafeteria) Carrington Pavilion entrance 506 Sixth Street between 7th and 8th Avenues Park Slope, Brooklyn; Public Transportation: F Train to Seventh Avenue. B67 (Seventh Ave.), B63 (Fifth Ave.), B75 (Smith St.), and B69 (Vanderbilt Ave.)
Contact Calvin Lee for more information.
Brooklyn VA Hospital Hepatitis B and C Support Group
VA New York Harbor HCS Brooklyn Campus
800 Poly Place
Room POD D
Brooklyn, NY 11209
Open to VA patients, after liver team evaluation.
Email: aytaman@va.gov
Contact Dr. Shalini Sehgal for more information.
Voices of Community Advocates and Leaders (VOCAL) Hepatitis C Group
80 A Fourth Ave
Brooklyn, NY 11225
Open to drug users and those that identify with drug use.
Meets: Thursdays from 2:00 – 3:00PM
Contact Carmen Davilla or Louie Jones for more information.
THE BRONX
Manhattan (Hep C Treatment Group)
CitiWide Harm Reduction HCV Groups
226 East 144th Street
Bronx, NY 10451
Meets: Every Friday: 10am- 11am
Phone: (718) 292-7718
Contact George Santana for more information.
Support Groups In Western New York
Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.
Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.
ALF also has identified virtual online support groups you can take advantage of by visiting this page.
Pine City
Alpha-1 Foundation Support Group – Pine City Alphas
Alpha-1 Foundation has over 80 Support Groups Nationwide for Liver and Lung affected Alphas. Please call for more information, including dates and times for support groups or please check www.alpha1.org
Phone: 607-734-1148
Web: http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups
Email: pinecitycarol@yahoo.com
Contact Carol Hosley for more information.
Rochester
Western NY PBCers Support Group
113 Creston Court
Rochester, NY 14612
A support group for people diagnosed with Primary Biliary Cirrhosis (PBC). Although we only meet as a group twice a year we do meet with new members at anytime needed and always take phone calls and questions.
Meets: meets formally twice yearly – Spring & Fall
Phone: 585-225-7845
Web: www.pbcers.org
Email: wnypbcsupport@rochester.rr.com
Contact Carol Roberts (PBCers Organization) for more information.
Williamsville
Hepatitis C Support Group
Erie Community College, North Campus
School Of Dental Hygiene – Community Room
Main and Youngs Rd
Williamsville, NY
Meets: 2nd Tuesday Of The Month 6:30 – 8:00 Pm
Phone: (716) 631-2517 x1463
Email: kmackert@buffalomedicalgroup.com
Contact Karen Mackert for more information.
Support Groups In Central New York
Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.
Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.
ALF also has identified virtual online support groups you can take advantage of by visiting this page.
Albany
Hepatitis C Support Group
Albany Gastroenterology Consultants
1375 Washington Ave
Suite 101
Albany, NY 12206
There will be no support group meetings during the summer months of July and August. We will begin the meetings again in September.
Meets: Meets Once Per Month. Check Website For Date/Time & Any Changes.
Phone: 518-438-4483 (Ext-2246)
Web: http://www.albanygi.com
Web: www.transplantsupport.org
Email: email4tso@gmail.com
Contact Yvonne Fuller for more information.
Johnson City
Dragon Slayers Support Group – Hepatitis C
277 Main Street
Johnson City, NY 13790
For individuals who are Hep C positive. Space is currently being renovated and meetings should begin by the first Saturday in August 2014
Meets: First Saturday of each month
Phone: 607-798-1706
Email: eharris@stapinc.org
Contact Elisa Harris for more information.
Delhi
Hepatitis C & Hepatitis B Support Group (Including Family, Friends, Medical)
O’Conner Hospital
Conference Room
Rt 28
Delhi, NY
Meetings open to all living with HCV and/or HBV, their families, friends and support including medical personnel. These meetings respect confidentiality and ask participants to do the same. As weather does not always permit, please call ahead to make sure meetings are taking place. Refreshments provided by O’Connor Hospital.
Meets: 2nd Thursday Of Every Month 6:00-7:00pm (Longer If Needed)
Phone: 607-746-7199
Email: lilliandem@gmail.com
Contact Lillian de Mauro for more information.
Support Groups In Westchester County
Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.
Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.
ALF also has identified virtual online support groups you can take advantage of by visiting this page.
Greenburgh
Transplant Support Organization Serving the NY of Westchester, Bronx, Putnam and Dutchess
Greenburgh Town Hall
177 Hillside Avenue
(Just north of I-287 at exit 5, Hillside Avenue)
Greenburgh, NY 10603
There is ample free parking at the Town Hall and it is accessible via public transportation.
Meets: Third Wednesday of the Month at 7:00pm
Phone: 914-941-2616
Web: www.transplantsupport.org
Email: email4tso@gmail.com
Valhalla
Westchester County (Hepatitis C)
Westchester Medical Center
100 Woods Road
Valhalla, NY 10595
Meets: every other Wednesday; 6-8pm
Phone: 914-493-7641
Contact Mimi Greenman for more information.
Bereavement Groups
Bereavement Support Groups
New York City, Long Island, Connecticut and New Jersey
CancerCare is seeking people who have lost a loved one to cancer to participate in its face to face and online bereavement support groups.
For information about the groups currently available please visit:
Web: www.cancercare.org/support_groups
Clinical Trials
Find a Clinical Trial anywhere…
Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.
New York
PFIC 1/2 Clinical Trial
Progressive Familial Intrahepatic Cholestasis (PFIC)
PFIC is a pediatric liver disease characterized by intense itching. Treatments to combat the itching are very limited and often ineffective.
- Mount Sinai is currently enrolling patients with PFIC 1/2 in a clinical drug treatment trial for itching (clinicaltrials.gov).
Phone: 212-659-8060 to obtain more information.
Contact Dr. Jaime Chu for more information.
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Last updated on September 20th, 2022 at 12:22 pm