Rare Liver Diseases

I Lend My Voice for My Grandma
August 8, 2022

“My grandma played a pivotal role in my decision to pursue health advocacy. As a public health professional, I am dedicated to raising awareness around the importance of doing more intentional outreach, education and research with linguistically and ethnically diverse communities to achieve health equity and improve polices that benefit all community members.”

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PFIC. Rare Disease. Real Lives.
August 5, 2022

Michelle had a successful liver transplant at 12 years old. She is currently 30 and working part-time. She says, “I feel good but get really tired. I have to remind myself to listen to by body and not overdo it” PFIC is starting to cause some scarring on Michelle’s transplanted liver but she keeps a positive mindset, “It isn’t bad. At least we know what’s causing it so we can manage it.”

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