Josh was diagnosed with a rare liver disease. His parents, humanitarian workers, faced their fair share of challenges, but nothing could have prepared them for this fight to save their child.
When I was 11, I was diagnosed with PSC and told I’d one day need a transplant. For ten years after that diagnosis I was relatively healthy but still listed for a transplant.
When Jordan was 16, he was diagnosed with Primary Sclerosing Cholangitis (PSC) and although he strived to keep his dream alive, he suffered from major infectious attacks from his disease.
My husband was diagnosed with Primary Sclerosing Cholangitis (PSC). PSC is a Chronic liver disease where the biliary system of the liver suffer chronic inflammation.
I was born with biliary atresia, a liver disease that occurs because there is a blockage in the ducts that carry bile from the liver to the gallbladder.
Gavin was jaundiced at birth. Not an entirely uncommon occurrence in newborns, so his pediatrician sent him home after the normal two days in the hospital with out serious concerns.
I couldn’t believe it, I wasn’t a drinker or smoker or did any drugs or anything that I knew of that would give me liver disease. I found out later it was my weight that damaged my liver.