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After taking her to American Family Children’s Hospital in Madison at the beginning of the summer, they learned she had biliary atresia, which meant the bile ducts from her liver were not formed.

Our doctor instantly recognized Matthew’s jaundice as the indication of a possibly serious condition.

He battled cirrhosis of the liver for about 6 months until we found out he had end stage liver failure and his kidneys started to malfunction as well.

She saw a GI specialist to help her with her illness, and had a nurse who became her advocate in this fight. She was diagnosed with cirrhosis of the liver.

I was diagnosed with PBC after a year of elevated liver enzymes. I have made an effort to learn all I can about liver disease in general.

When she was just two months old, Noel was diagnosed with a liver disease called Biliary Atresia. Her parents were devastated when she had to undergo surgery to clear her bile ducts.

Diagnosed with biliary atresia at only two weeks old and receiving his first surgery at three and a half weeks, Nick ultimately needed a liver transplant when he entered adolescence.

Regina's symptoms did not improve and a biopsy revealed primary biliary cirrhosis, an autoimmune disease that attacks the liver. She needed an expert in liver disease.

I was diagnosed with PBC Primary Biliary Cholangitis in May 09, after having pain from straining to move something at work.

It took many hospital visits, inconclusive tests and finally a visit to learn Emma had Crigler-Najjar Syndrome, a rare life-threatening genetic condition that affects the liver.

Our son Andrew was born September 30, 2013 with a genetic liver disease called Alagille Syndrome. At 8 days old we started seeing a liver specialist at Children’s of Alabama.

Having a child with a rare genetic liver disease can be filled with so much fear, anxiety and uncertainty. Our son Isaac, 17, has genetic mutations on his ABCB11 gene.