Blog

To help you understand how to eat if you have PBC, we consulted Megan Gutierrez, Advanced Dietitian who has extensive experience providing nutrition counseling to people with PBC.

Do you realize that your liver is depending on you? It’s true. Even though you can’t see it hidden away under your rib cage, if your liver could speak to you, it would say: “I’m working hard…"

“PBC can be a lonely disease, as most people don’t understand it,” wrote a member of the American Liver Foundation’s Facebook group.

I went into surgery at about 225 lbs. and when I got home after rehabilitation I weighed 138 lbs. I worked with in home physical therapist and eventually start slowly going back to a health club.

My name is Carolyn Evans and I was diagnosed with Primary Biliary Cholangitis (PBC) in 1992.

Biliary atresia is a disease of the bile ducts that affects only infants. It is rare, affecting about one out of every 18,000 infants.

I was diagnosed with PBC at the age of 43. I suspect that I had it long before that as I had already been diagnosed with Hashimoto’s Thyroiditis and had been told I had high liver enzymes.

Liver cancer strikes 33,000 Americans annually, according to the American Cancer Society and it is expected that 23,000 Americans will die as a result of liver cancer this year.

Approximately 6,000 liver transplants are performed in the U.S. each year. But more than 17,000 Americans are still waiting for donated livers to become available for transplants.

ALF asked Dr. Boyer to share his perspective on improved prospects for PBC patients and their challenges to effective treatment.

Test your knowledge about liver disease and learn more about what fatty liver disease is…

My story begins with a diagnosis of Primary Sclerosing Cholangitis. After the diagnosis, I required numerous stents to be placed in my bile duct through a procedure called an ERCP.