Rare Liver Diseases

Jessie had no idea she was born with a rare, chronic liver disease until she found herself in a desperate fight for her life and needed a transplant to survive. Learn more about Jessie's story and the importance of raising awareness about liver health and organ donation.

My journey through ICP began with my first pregnancy in 2003, with my son, Jorden. I had been grateful for my health all my life, but towards the end of my pregnancy, something was wrong.

Meet Melissa Sanchez – a dedicated volunteer and passionate advocate for the American Liver Foundation (ALF). Melissa said, “I advocate in memory of my grandmother, Aira Sanchez, who bravely battled end stage liver disease from 2012-2014.

Meet Mya Longacre, an ALF patient volunteer who has been navigating her journey with liver disease since birth.

This summit focuses on how to avoid misdiagnoses, increasing education, address stigmas, improve patient experience, and investigate how telemedicine plays a role.

The Kostecki family faced many challenges in discovering daughter Abby's diagnosis of a rare form of liver disease…

Primary liver cancer begins in the cells of the liver. Secondary liver cancer develops when cancer cells from another part of the body spread to the liver; this type of cancer may also be referred to as metastatic liver cancer.

Liver disease takes many forms. There are some forms that are less common and this article discusses some of those.

Alpha-1 Antitrypsin Deficiency is a genetic condition, passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age.