Life with PBC

Lydia had no idea she was born with a chronic autoimmune liver disease until one day she found herself desperately fighting for her life. She is now on a mission to help spread awareness about the importance of liver health an early detection, and to encourage lawmakers to increase federal funding for the study of liver disease research. Read Lydia's story now!

We asked dozens of individuals with PBC what it means to live successfully with this condition, and we’re pleased to share a few of their answers here.

Dr. Gideon Hirschfield is a leading voice in the field of autoimmune liver disease.

This interview with with Dr. Marina Silveira focuses on her research on primary biliary cholangitis (PBC).

The American Liver Foundation recently asked 20 doctors to share the advice they give to people newly diagnosed with Primary Biliary Cholangitis (PBC).

Parenting while living with PBC can present all sorts of challenges, such as how to talk to your children about your condition.

Holidays. Weddings. Anniversaries. Special Occasions. These are often the most joyous moments of our life. But liver disease can make it difficult to fully participate.

To help you understand how to eat if you have PBC, we consulted Megan Gutierrez, Advanced Dietitian who has extensive experience providing nutrition counseling to people with PBC.

“PBC can be a lonely disease, as most people don’t understand it,” wrote a member of the American Liver Foundation’s Facebook group.

ALF asked Dr. Boyer to share his perspective on improved prospects for PBC patients and their challenges to effective treatment.

It is not uncommon for people affected by primary biliary cholangitis (PBC) to have at least one other autoimmune condition.