Pediatric Liver Disease

Heidi shares her story and personal experiences about Biliary Atresia.

Heather shares her story and personal experiences about Biliary Atresia.

When Tigerlily White of Falmouth needed a liver transplant, her mother, Crystal, donated part of her own liver. Crystal raised money for ALF by running the Boston Marathon.

Annistyn Kate was diagnosed with a rare liver disease called Biliary Atresia (BA). At 2 months old, her mom, was told that she needed a major operation called a Kasai procedure.

Our child was born jaundiced and has been continuously testing for his jaundice for 50 days. After 50 days, he had a surgery where the doctor found out that he has biliary atresia.

Josh was diagnosed with a rare liver disease. His parents, humanitarian workers, faced their fair share of challenges, but nothing could have prepared them for this fight to save their child.

I was born with biliary atresia, a liver disease that occurs because there is a blockage in the ducts that carry bile from the liver to the gallbladder.

It was determined she didn’t have bile ducts to drain her liver. This disease is called Biliary Atresia, they then proceeded to do a Kasi procedure.

Gavin was jaundiced at birth. Not an entirely uncommon occurrence in newborns, so his pediatrician sent him home after the normal two days in the hospital with out serious concerns.

At about 2 weeks old I was diagnosed with Biliary Atresia and almost immediately underwent a Kasai Procedure to correct the problem.

When I was born I was diagnosed with Biliary Atresia. For the next decade of my life I was in and out of the hospital plagued by jaundice and other complications from my disease.

Cooper initially was in intensive care. Then he was diagnosed with Biliary Atresia. He underwent a Kasai procedure so that bile could drain into his intestine.