Patient Stories

I couldn’t believe it, I wasn’t a drinker or smoker or did any drugs or anything that I knew of that would give me liver disease. I found out later it was my weight that damaged my liver.

At about 2 weeks old I was diagnosed with Biliary Atresia and almost immediately underwent a Kasai Procedure to correct the problem.

When I was born I was diagnosed with Biliary Atresia. For the next decade of my life I was in and out of the hospital plagued by jaundice and other complications from my disease.

I felt healthy. I was training for a half marathon. How could this be? When a little shadow showed up on my liver during a test for something else, it really seemed like nothing to worry about.

I was first diagnosed with PBC in 2010, after months of medications that weren’t helping or working the way my Doctor hoped. Upon further testing, I was diagnosed with PSC in 2011.

His medical and transplant teams spent the next three months stabilizing Leonard’s condition so he could receive a liver transplant. Prolonged use of OTC medications had damaged his liver.

Cooper initially was in intensive care. Then he was diagnosed with Biliary Atresia. He underwent a Kasai procedure so that bile could drain into his intestine.

Nick’s grandfather had died of liver disease he thought that teaming up with ALF would be a great way to honor his grandfather’s memory.

After many visits to the family doctor I was finally referred to a specialist and was diagnosed with Biliary Atresia at 9 weeks old.

I was born with BA and had two surgeries before the age of one. I had no idea why I had these scars and went on with life.

After taking her to American Family Children’s Hospital in Madison at the beginning of the summer, they learned she had biliary atresia, which meant the bile ducts from her liver were not formed.

Our doctor instantly recognized Matthew’s jaundice as the indication of a possibly serious condition.