Patient Stories

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Brenda C.
June 6, 2022

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

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Jessica’s Story
April 18, 2022

AVID ADVOCATE AND VIVACIOUS VOLUNTEER Jess became involved with the American Liver Foundation (ALF) after being diagnosed with Primary Biliary Cholangitis (PBC) in […]

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Paula’s Story
December 15, 2021

A biopsy of my liver revealed that I was suffering from PBC. I was given medication to help slow the progression of the disease.

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Jess S.
August 23, 2021

I was admitted to the local hospital for bleeding varices. I underwent surgery to stop the bleeding and was told I could possibly get a liver within the next few days.

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Amy C.
September 10, 2020

I was diagnosed with Primary Biliary Cholangitis (PBC) in April 2016. Previous to the diagnosis, I experienced horrible fatigue that continued for 7 years before we figured out the cause.

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Amy H.
July 23, 2020

Fifteen years ago I was diagnosed with a very rare chronic auto-immune disease called, Primary Biliary Cholangitis (PBC).

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Tawny’s Memory Loss Was Linked to Her Liver Disease
May 20, 2020

In her early thirties, Blum was already struggling to manage not one, but two rare liver diseases: primary sclerosing cholangitis (PSC) and primary biliary cholangitis (PBC).

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Karen S.
May 20, 2020

I was diagnosed with PBC. My symptoms other than fatigue were non existent. At that time I started having bleeding from esophageal varices, that however was just outpatient and manageable.

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Leslie S.
May 20, 2020

I was diagnosed with PBC at the age of 43. I suspect that I had it long before that as I had already been diagnosed with Hashimoto’s Thyroiditis and had been told I had high liver enzymes.

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Pilar C.
April 20, 2020

I was diagnosed with PBC after a year of elevated liver enzymes. I have made an effort to learn all I can about liver disease in general.

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Regina S.
April 20, 2020

Regina's symptoms did not improve and a biopsy revealed primary biliary cirrhosis, an autoimmune disease that attacks the liver. She needed an expert in liver disease.

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Sandy
April 20, 2020

I was diagnosed with PBC Primary Biliary Cholangitis in May 09, after having pain from straining to move something at work.

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