Rare Liver Diseases
When Bruce began feeling continuously fatigued, he assumed it was just his workload. Unfortunately, it ended up becoming an all-consuming mystery. Learn about Bruce’s story and how his persistence finally helped him achieve a working diagnosis and how he is now giving back to move forward.
Bruce Dimmig, motivated ALF Advocacy Ambassador and volunteer extraordinaire, has been living with the uncertainties of life with a rare liver disease for more than a decade and a half. Read about his story and how his persistence helped him get to a working diagnosis nearly ten years later.
Chris and Kaila bonded over their diagnosis, their passion for running and so many other things. Days turned into weeks, weeks into months and months into years – it was clear this was more than a friendship, this was forever.
I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?
Kaila became involved with the American Liver Foundation (ALF) in 2017 after her friend, Courtney, was diagnosed with liver cancer.
In January 2017, Anne was diagnosed with end-stage liver disease. Over the next two months, she experienced several hospitalizations, multiple side effects and of course, tremendous worry.
Casey’s pediatrician referred her to a liver specialist and after multiple tests, she was diagnosed with Wilson Disease.
David is a two-time liver transplant recipient. In 1997, he received a liver, and in 2007 he received the liver and kidney.
Ten years earlier, Jack was diagnosed with alpha-1 antitrypsin deficiency, an inherited disorder that can ultimately lead to liver failure.
Michaela Layton was diagnosed at age 17 with Wilson Disease, a rare genetic disease that causes copper buildup in the liver.