Patient Stories

When Jordan was 16, he was diagnosed with Primary Sclerosing Cholangitis (PSC) and although he strived to keep his dream alive, he suffered from major infectious attacks from his disease.

Joey was a beautiful energetic 2 year old when liver failure claimed her life.

My husband was diagnosed with Primary Sclerosing Cholangitis (PSC). PSC is a Chronic liver disease where the biliary system of the liver suffer chronic inflammation.

I was born with biliary atresia, a liver disease that occurs because there is a blockage in the ducts that carry bile from the liver to the gallbladder.

It was determined she didn’t have bile ducts to drain her liver. This disease is called Biliary Atresia, they then proceeded to do a Kasi procedure.

Gretta is thankful for her diabetes. Because of her condition, doctors were able to diagnose her liver cancer at a very early stage.

Gavin was jaundiced at birth. Not an entirely uncommon occurrence in newborns, so his pediatrician sent him home after the normal two days in the hospital with out serious concerns.

I couldn’t believe it, I wasn’t a drinker or smoker or did any drugs or anything that I knew of that would give me liver disease. I found out later it was my weight that damaged my liver.

At about 2 weeks old I was diagnosed with Biliary Atresia and almost immediately underwent a Kasai Procedure to correct the problem.

When I was born I was diagnosed with Biliary Atresia. For the next decade of my life I was in and out of the hospital plagued by jaundice and other complications from my disease.

I felt healthy. I was training for a half marathon. How could this be? When a little shadow showed up on my liver during a test for something else, it really seemed like nothing to worry about.

I was first diagnosed with PBC in 2010, after months of medications that weren’t helping or working the way my Doctor hoped. Upon further testing, I was diagnosed with PSC in 2011.