Patient Stories

Knute shares his story and personal experiences about Hepatitis C.

Heidi shares her story and personal experiences about Biliary Atresia.

Heather shares her story and personal experiences about Biliary Atresia.

PSC is a disease-causing bile duct inflammation and scarring that eventually leads to liver failure. Its cause is unknown and its only cure is liver transplant.

When Liver Disease tried to take her down she fought harder than anyone I know.

He is post-transplant liver, 13 years & post-transplant kidney, 9 years and still going strong! The moral of his story, NEVER GIVE UP!

I was born and diagnosed at the age of two with Tyrosinemia, a very rare metabolic disease. This is where the liver doesn’t have the proper enzymes it needs to break down protein.

Several ultrasounds later I was informed that I had an excessive amount of fat on my liver and that my liver was slightly enlarged.

When Tigerlily White of Falmouth needed a liver transplant, her mother, Crystal, donated part of her own liver. Crystal raised money for ALF by running the Boston Marathon.

Annistyn Kate was diagnosed with a rare liver disease called Biliary Atresia (BA). At 2 months old, her mom, was told that she needed a major operation called a Kasai procedure.

Our child was born jaundiced and has been continuously testing for his jaundice for 50 days. After 50 days, he had a surgery where the doctor found out that he has biliary atresia.

Josh was diagnosed with a rare liver disease. His parents, humanitarian workers, faced their fair share of challenges, but nothing could have prepared them for this fight to save their child.