Rare Liver Diseases

Support for Mothers affected by ICP
June 12, 2023

My journey through ICP began with my first pregnancy in 2003, with my son, Jorden. I had been grateful for my health all my life, but towards the end of my pregnancy, something was wrong.

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Volunteer Appreciation Week
April 16, 2023

Meet Melissa Sanchez – a dedicated volunteer and passionate advocate for the American Liver Foundation (ALF). Melissa said, “I advocate in memory of my grandmother, Aira Sanchez, who bravely battled end stage liver disease from 2012-2014.

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Having a rare liver disease can be tough for anyone, especially a child
February 28, 2023

Meet Mya Longacre, an ALF patient volunteer who has been navigating her journey with liver disease since birth.

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Rare Liver Disease Summit Seeks to Improve Patient Health Outcomes
June 28, 2022

This summit focuses on how to avoid misdiagnoses, increasing education, address stigmas, improve patient experience, and investigate how telemedicine plays a role.

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Rare Disease Day 2022: Meet the Kostecki Family
February 8, 2022

The Kostecki family faced many challenges in discovering daughter Abby's diagnosis of a rare form of liver disease…

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Rare Forms of Liver Cancer
February 27, 2021

Primary liver cancer begins in the cells of the liver. Secondary liver cancer develops when cancer cells from another part of the body spread to the liver; this type of cancer may also be referred to as metastatic liver cancer.

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Rare Liver Diseases
May 20, 2020

Liver disease takes many forms. There are some forms that are less common and this article discusses some of those.

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New Research on Alpha-1 Antitrypsin Deficiency
May 20, 2020

Alpha-1 Antitrypsin Deficiency is a genetic condition, passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age.

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