Blog

Topics:
PFIC. Rare Disease. Real Lives.
August 5, 2022

Michelle had a successful liver transplant at 12 years old. She is currently 30 and working part-time. She says, “I feel good but get really tired. I have to remind myself to listen to by body and not overdo it” PFIC is starting to cause some scarring on Michelle’s transplanted liver but she keeps a positive mindset, “It isn’t bad. At least we know what’s causing it so we can manage it.”

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Lisa’s Story
July 19, 2022

I was diagnosed with stage IV intrahepatic cholangiocarcinoma at the age of 46 and given six months to live. I didn’t feel sick, so how could I be dying?

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Your Story is Our Most Important Message
July 14, 2022

ALF advocates meet virtually and in-person with elected officials in their local cities and towns to share their liver stories and lend their voices to urge action.

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Rare Liver Disease Summit Seeks to Improve Patient Health Outcomes
June 28, 2022

This summit focuses on how to avoid misdiagnoses, increasing education, address stigmas, improve patient experience, and investigate how telemedicine plays a role.

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Tully Girls Run for Dad
June 16, 2022

Sarah and Emily Tully have cheered their parents, Deb and Keith, on from the sidelines of the Boston Marathon for nearly […]

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Q&A About Liver Cancer
June 9, 2022

The American Liver Foundation reached out to top doctors Ghassan K. Abou-Alfa, MD, and Ronald P. DeMatteo, MD., to get answers to the most commonly asked liver cancer questions.

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Dao D.
June 7, 2022

I have worked in in the area of hepatitis B virus infection (HBV) from basic research to clinical science and patient care as well as outreach/advocacy programs for more than 9 years.

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Brenda C.
June 6, 2022

I was diagnosed with AIH/PBC (Autoimmune Hepatitis/ Primary Biliary Cholangitis) crossover and Stage 3 liver fibrosis in September 2011 after 6 months of extreme fatigue.

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Finding a Liver Transplant is Critical for People with Liver Failure
June 6, 2022

A successful liver transplant is lifesaving for people with liver failure and there are thousands of people currently waiting to receive a liver transplant.

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Aidan D.
June 2, 2022

Within hours, Heather and Jeff received the shocking news from doctors: Aidan was in “acute liver failure”.

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Bobby’s Story
May 25, 2022

Most know Bobby Rydell from hit songs like Volare. However, what most don’t know is that in 2012, Bobby underwent a double organ transplant, receiving 75% of a liver and one kidney.

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Valen
May 25, 2022

Since the day she was born, Valen Keefer, has faced a challenging medical heritage. Everyone on her mother’s side has suffered from polycystic kidney disease (PKD).

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