For Patients For Caregivers For Medical Professionals

HELPLINE 1-800-465-4837
Mon-Fri 9am – 5pm EST

New York State Resource Center

State Resources

Our Mission

ALF promotes education, advocacy, support services and research for the prevention, treatment and cure of liver disease. ALF Greater New York provides a wide variety of these services including information and referral, education programs, support groups, exciting fundraising events, and an array of volunteer opportunities.

Kathleen Flynn
National Senior Director, Engagement

For help with issues related to liver disease, please contact our Help Center by using the Live Chat feature at the bottom of your browser window or call us at (800) 465-4837 Monday through Friday 9 am to 5 pm Eastern Time or by email at info@liverfoundation.org.

MANHATTAN

Alpha-1 Foundation Support Group – New York / New Jersey

New York, New York

Alpha-1 Foundation has over 80 Support Groups Nationwide for Liver and Lung affected Alphas. Please call for more information, including dates and times for support groups or please check www.alpha1.org

Contact Lori Tartell and Joe Reidy for more information.

Phone: 212-523-5471 (201-444-7839)
Web: http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups
Email: ltartell@chpnet.org


Manhattan HCV Support Group

Lower East Side Harm Reduction Center
25 Allen Street
New York, NY 10002

Meets: Thursdays from 1:00 – 2:00 pm
Phone: 212-226-6333 ext 114

Contact Perla Romero for more information.


Manhattan Hepatitis C Support Group

Mount Sinai Medical Center
Guggenheim Pavilion
1425 Madison Ave (98th St)
Room 1184
New York, NY

Open to all

Meets: Third Wednesday of each month; 6- 7:30 p.m.
Phone: 212-659-8928

Contact Viktoriya Khaitova for more information.


Manhattan HVC Support Group

Positive Health Project
301 West 37th Street
New York, NY 10018

Meets: Every Thursday; 11:00am-12:00pm
Phone: 212-465-8304

Contact Yvette Gonzalez for more information.


Post Transplant Support Group

New York Presbyterian Hospital
Milstein Hospital Building
177 Fort Washington Avenue
7 Hudson South – Reemtsma Conference Room 213
New York, NY

The Post-Transplant Support Group meets twice a month to share experiences, ideas and mutual support for recipients and their families.

Meets: First and Third Thursday of every month; 10:00-11:30AM
Phone: 212-305-1884

Contact Aimee Muth for more information.


Pre-Post Transplant Educational Workshop

New York Presbyterian Hospital/Columbia University Medical Center
Hammer Health Sciences Building
701 W 168th St @ Fort Washington
Lower Level LL-204
New York, NY 10032

For Pre-Post Transplant Patients and their caregivers. Please contact Aimee Muth to confirm your attendance.

Meets: Thursdays from 4:00-5:20pm
Phone: 212-305-1884

Contact Aimee Muth for more information.


Transplant Support Group

The Recanati/Miller Transplantation Institute at Mount Sinai Hospital
One Gustave L. Levy Place
New York, NY 10029

This support group is open to all patients and patient’s family members who are pre or post liver and/or kidney transplantation. Entrance on 1468 Madison Ave.; (100th St. and Madison Ave.); Guggenheim Pavillion; Floor: 9 Center, Patient Lounge

Meets: Thursdays 1pm
Phone: (212) 241-7944


New York Primary Biliary Cirrhosis Support Group

Mt. Sinai
East Building
1425 Madison Ave
Madison Ave. and corner of 98th St. 11th Floor, Room 1184
New York, NY

“The New Frontier of Liver Disease Treatments” With speaker Dr. Scott Friedman, Chief of the Division of Liver Diseases, Mt. Sinai School of Medicine Sandwiches and beverages will be available. Intercept Pharmaceuticals, Inc. helped fund this meeting. *The support group portion of the meeting is restricted to those with PBC and their invited family/friends.

Meets: Thursday, October 17th, 2019 6:30-7:20 speaker Q & A, 7:30 8:30 pm *Support group
Email: normagoetz1@gmail.com

Contact Norma Goetz for more information.


BROOKLYN

Hepatitis C Support Group

New York Methodist Hospital
Carrington Pavilion entrance
506 Sixth Street (between 7th and 8th Avenues)
Brooklyn, NY

Refreshments will be served.

Meets: 3rd Wednesday of each Month 6:00-7:30 PM
Phone: 718-780-3125
Getting There: Executive Dining Room (next to Hospital Cafeteria) Carrington Pavilion entrance 506 Sixth Street between 7th and 8th Avenues Park Slope, Brooklyn; Public Transportation: F Train to Seventh Avenue. B67 (Seventh Ave.), B63 (Fifth Ave.), B75 (Smith St.), and B69 (Vanderbilt Ave.)

Contact Calvin Lee for more information.


Brooklyn VA Hospital Hepatitis B and C Support Group

VA New York Harbor HCS Brooklyn Campus
800 Poly Place
Room POD D
Brooklyn, NY 11209

Open to VA patients, after liver team evaluation.

Email: aytaman@va.gov

Contact Dr. Shalini Sehgal for more information.


Voices of Community Advocates and Leaders (VOCAL) Hepatitis C Group

80 A Fourth Ave
Brooklyn, NY 11225

Open to drug users and those that identify with drug use.

Meets: Thursdays from 2:00 – 3:00PM

Contact Carmen Davilla or Louie Jones for more information.


THE BRONX

Manhattan (Hep C Treatment Group)

CitiWide Harm Reduction HCV Groups
226 East 144th Street
Bronx, NY 10451

Meets: Every Friday: 10am- 11am
Phone: (718) 292-7718

Contact George Santana for more information.


Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.

ALF also has identified virtual online support groups you can take advantage of by visiting this page.


Pine City

Alpha-1 Foundation Support Group – Pine City Alphas

Alpha-1 Foundation has over 80 Support Groups Nationwide for Liver and Lung affected Alphas. Please call for more information, including dates and times for support groups or please check www.alpha1.org

Phone: 607-734-1148
Web: http://www.alpha1.org/Alphas-Friends-Family/Support/Support-Groups
Email: pinecitycarol@yahoo.com

Contact Carol Hosley for more information.


Rochester

Western NY PBCers Support Group

113 Creston Court
Rochester, NY 14612

A support group for people diagnosed with Primary Biliary Cirrhosis (PBC). Although we only meet as a group twice a year we do meet with new members at anytime needed and always take phone calls and questions.

Meets: meets formally twice yearly – Spring & Fall
Phone: 585-225-7845
Web: www.pbcers.org
Email: wnypbcsupport@rochester.rr.com

Contact Carol Roberts (PBCers Organization) for more information.


Williamsville

Hepatitis C Support Group

Erie Community College, North Campus
School Of Dental Hygiene – Community Room
Main and Youngs Rd
Williamsville, NY

Meets: 2nd Tuesday Of The Month 6:30 – 8:00 Pm
Phone: (716) 631-2517 x1463
Email: kmackert@buffalomedicalgroup.com

Contact Karen Mackert for more information.


Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.

ALF also has identified virtual online support groups you can take advantage of by visiting this page.


Albany

Hepatitis C Support Group

Albany Gastroenterology Consultants
1375 Washington Ave
Suite 101
Albany, NY 12206

There will be no support group meetings during the summer months of July and August. We will begin the meetings again in September.

Meets: Meets Once Per Month. Check Website For Date/Time & Any Changes.
Phone: 518-438-4483 (Ext-2246)
Web: http://www.albanygi.com
Web: www.transplantsupport.org
Email: email4tso@gmail.com

Contact Yvonne Fuller for more information.


Johnson City

Dragon Slayers Support Group – Hepatitis C

277 Main Street
Johnson City, NY 13790

For individuals who are Hep C positive. Space is currently being renovated and meetings should begin by the first Saturday in August 2014

Meets: First Saturday of each month
Phone: 607-798-1706
Email: eharris@stapinc.org

Contact Elisa Harris for more information.


Delhi

Hepatitis C & Hepatitis B Support Group (Including Family, Friends, Medical)

O’Conner Hospital
Conference Room

Rt 28
Delhi, NY

Meetings open to all living with HCV and/or HBV, their families, friends and support including medical personnel. These meetings respect confidentiality and ask participants to do the same. As weather does not always permit, please call ahead to make sure meetings are taking place. Refreshments provided by O’Connor Hospital.

Meets: 2nd Thursday Of Every Month 6:00-7:00pm (Longer If Needed)
Phone: 607-746-7199
Email: lilliandem@gmail.com

Contact Lillian de Mauro for more information.


Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by a medical professional. Some support groups are facilitated by 3rd party organizations and individuals in this region.

ALF also has identified virtual online support groups you can take advantage of by visiting this page.


Greenburgh

Transplant Support Organization Serving the NY of Westchester, Bronx, Putnam and Dutchess

Greenburgh Town Hall
177 Hillside Avenue
(Just north of I-287 at exit 5, Hillside Avenue)
Greenburgh, NY 10603

There is ample free parking at the Town Hall and it is accessible via public transportation.

Meets: Third Wednesday of the Month at 7:00pm
Phone: 914-941-2616
Web: www.transplantsupport.org
Email: email4tso@gmail.com


Valhalla

Westchester County (Hepatitis C)

Westchester Medical Center
100 Woods Road
Valhalla, NY 10595

Meets: every other Wednesday; 6-8pm
Phone: 914-493-7641

Contact Mimi Greenman for more information.


Bereavement Support Groups

New York City, Long Island, Connecticut and New Jersey

CancerCare is seeking people who have lost a loved one to cancer to participate in its face to face and online bereavement support groups.

For information about the groups currently available please visit:

Web: www.cancercare.org/support_groups


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


New York

PFIC 1/2 Clinical Trial

Mount Sinai Hospital

Progressive Familial Intrahepatic Cholestasis (PFIC)

PFIC is a pediatric liver disease characterized by intense itching. Treatments to combat the itching are very limited and often ineffective.

  • Mount Sinai is currently enrolling patients with PFIC 1/2 in a clinical drug treatment trial for itching (clinicaltrials.gov).

Phone:  212-659-8060 to obtain more information.

Contact Dr. Jaime Chu for more information.

George G. Abdelsayed, MD, FACG, AGAF, FAASLD
Richmond University Medical Center of Staten Island

David E. Bernstein, MD
Northwell Health

Roxana Bodin, MD
Westchester Medical Center

Robert S. Brown Jr, MD
Weill Cornell Medicine, Center for Liver Disease

Jaime Chu, MD
Mount Sinai Medical Center

James Crismale, MD
Mount Sinai Medical Center

Andrew De La Torre, MD, FACS
Carepoint Healthcare, Hudson County New Jersey

Douglas Dieterich, MD
Mount Sinai Medical Center

Amreen Dinani, MD PhD
Mount Sinai Downtown – Union Square

Jean C. Emond, MD
New York Presbyterian Medical Center/Columbia

Jonathan Fenkel, MD

Brett Fortune, MD
Weill Cornell Medicine

Paul Gaglio, MD
New York Presbyterian Hospital-Columbia University Medical Center

Sanjeev Gupta, MD
Albert Einstein College of Medicine

Debra Guss, DNP, ANP-C
New York Presbyterian Brooklyn Methodist Hospital

 

 

Ira Jacobson, MD
NYU Langone Health

Sonal Kumar, MD
Weill Cornell Medicine

Kathleen Loomes, MD
Children’s Hospital of Philadelphia

Catherine Lucero, MD
New York Presbyterian

Smruti R. Mohanty, MD, MS, FACP
New York Presbyterian Brooklyn Methodist Hospital

Nadia Ovchinsky, MD
The Children’s Hospital at Montefiore-Albert Einstein College of Medicine

Melissa Palmer, MD

 

 

James Park, MD
NYU Langone Medical Center

John F. Reinus, MD
Montefiore Medical Center

Russell Rosenblatt, MD, MS
Weill Cornell Medicine

Emily Schonfeld, MD
Weill Cornell Medicine

Myron Schwartz, MD
Mount Sinai Health System

Shari Sheflin, DO
Northwell Health System

Julia Wattacheril, MD, MPH
Columbia University and Medical Center

David C. Wolf, MD
Westchester Medical Center

In addition to the resources listed above in your state or district, ALF provides these resources that are available no matter where you are. Explore them now…


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