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HELPLINE 1-800-465-4837
Mon-Fri 9am – 5pm EST

Massachusetts State Resource Center

State Resources

Our Mission

ALF promotes education, advocacy, support services and research for the prevention, treatment and cure of liver disease. ALF Mid-Atlantic provides a wide variety of these services including information and referral, education programs, support groups, exciting fundraising events, and an array of volunteer opportunities.

Sheri Singer
National Director, Engagement

For help with issues related to liver disease, please contact our Help Center by using the Live Chat feature at the bottom of your browser window or call us at (800) 465-4837 Monday through Friday 9 am to 5 pm Eastern Time or by email at info@liverfoundation.org.

Support groups provide a place for individuals affected by a similar condition or circumstance to provide and receive support and share their experiences.

Not all support groups are facilitated by an American Liver Foundation volunteer. Some support groups are facilitated by 3rd party organizations and individuals in this region. Some support groups may no longer be active and have not informed us; if you are aware of additional support groups in New England or groups which no longer meet, please e-mail us to let us know.


Brockton

Anonymous Hepatitis C Support Group

COPE Center
81 Pleasant Street
Brockton, MA

Meets: Last Tuesday of the month, 7:00pm-8:30pm
Phone: (508) 583-3405
Email: cope@bamsi.org


Boston

C is for Cure: Hepatitis C Support Group

Father Mychal Judge Recovery Center
St. Anthony Shrine
100 Arch Street
Boston, MA 02110

This is an American Liver Foundation sponsored Support Group providing answers to questions about testing, treatment, and where to turn for help.

Meets: Last Wednesday of the Month at 5:30 p.m.
Phone: 781-526-3679

Contact Anthony for more information.


Burlington

Hepatitis C & Liver Disease Support Group

Lahey Hospital and Medical Center
41 Mall Road
4 West Conference Room
Burlington, MA

This group is open to pre and post-transplant patients, family, and caregivers as well. Please note, there is no group held in August.

Meets: 1st Wednesday, 6:00 p.m. – 7:30 p.m
Contact: Kimberly Ricciardone


Cambridge

Hepatitis C Support Group

AIDS Action Committee
359 Green Street
Cambridge, MA 02139

Lunch is offered during this support group. Attendees are invited to arrive at 12:30 for lunch. The meeting begins at 1 pm.

Meets: 1st Wednesday of the month, 1-2:30
Phone: 617-599-0225
Web: https://aac.org/

Contact Luis (AIDS Action Committee) for more information.


Gloucester

Hepatitis C Support Group

North Shore Health Project
67 Middle Street
Gloucester, MA 02930

Meets: 2nd Saturday of month, 10-11:30am
Phone: (978) 283-0101
Web: www.healthproject.org

Contact Jason for more information.


Find a Clinical Trial anywhere…

Participating in a clinical trial is a great way to contribute to curing, preventing and treating liver disease and its complications. Start your search here to find clinical trials that need people like you.


Boston

A Phase 2, Open-Label, Multicenter, Multi-cohort Study to Investigate the Safety and Efficacy of Sofosbuvir/Velpatasvir in Adolescents and Children

Boston Children’s Hospital

  • All genotypes
  • Expect enrollment to start with 12-17 year olds by late winter/early spring 2017

Contact Courtney Glavin for more information.

Phone: 617-355-8350

An Open-Label, Multicenter Study to Evaluate the Pharmacokinetics, Safety, and Efficacy of Glecaprevir/Pibrentasvir in Pediatric Subjects with Genotype

Boston Children’s Hospital

  • All genotypes
  • Expect enrollment with 12/17 year olds by late winter/early spring 2017

Contact Denis Nguyen for more information.

Phone: 617-355-0530

An Open-Label, Multicenter, Study to Evaluate the Pharmacokinetics, Safety and Efficacy of OBV, PTV, RTV with or without DSV and with or without RBV i

Boston Children’s Hospital

  • Currently enrolling patients 9-11yo
  • Expect to enroll 8-10yo by spring/summer 2017

Contact Denis Nguyen for more information.

Phone: 617-355-0530

Phone: 617-724-3836
Email: LiverResearchGroup@partners.org

Massachusetts General Hospital

MGH has a few in the pipeline that they anticipate to be starting in the next 3-4 months (mainly NASH and HCV). In terms of MGH trials – the LiverResearchGroup@partners.org is a great contact to give out if people are just looking to hear more about what’s available, etc.

Intercept – drug Obeticholic Acid (ClinicalTrials.gov Identifier: NCT02548351)

Population: NASH + Fibrosis stage 1-3

Study Phase: 3

Treatment period: up to 5 years (interim analysis at 18 months)

Randomization: 1:1:1 (placebo/10mg/25mg)

* Genfit – drug Elafibranor

Population: NASH + Fibrosis (stage 1-4)

Treatment period: 72 weeks with long term treatment rollover (up to 4 additional years)

Study Phase: 3

Randomization: 2:1 (120mcg/placebo)

Conatus12 – drug Emricasan (ClinicalTrials.gov Identifier: NCT02686762)

Population: NASH + Fibrosis stage 1-3

Treatment period: 72 weeks + 4 weeks follow-up

Study Phase: 2

Randomization: 1:1:1 (placebo/5mg/50mg)

Novartis – drug LJN452 (ClinicalTrials.gov Identifier: NCT02855164)

Population: NASH + Fibrosis (stage 1-3)

Treatment period: 12 weeks

Study Phase: 2

Randomization: Part A: 1:1:1:1:1 (10mg/30mg/60mg/90mg/placebo)

NASH Cirrhosis

Conatus14 – Emricasan (ClinicalTrials.gov Identifier: NCT02960204)

Population: NASH + Cirrhosis + Severe Portal Hypertension (HVPG > 12)

Treatment period: 24 weeks

Study Phase: 2

Randomization: 1:1:1:1 (placebo/5mg/25mg/50mg)

HCV

Gilead – drug Harvoni (ClinicalTrials.gov Identifier: NCT02503735)

Population: Chronic Kidney Disease + HCV

Treatment period: 12 weeks

Study Phase: 4

Randomization: open label (no placebo)

AbbVie – drug Viekira Pak (ClinicalTrials.gov Identifier: NCT02946034)

Population: Chronic Kidney Disease + HCV

Treatment period: 12 weeks

Study Phase: 4

Randomization: open label (no placebo)

Contact JLGustafson@partners.org (MGH Liver Research Group) for more information.

Phone: 617-724-3836
Email: LiverResearchGroup@partners.org


Worcester

UMass Memorial Medical Center

University of Massachusetts Medical School
55 Lake Avenue North HA.382
Worcester, MA 01655-0002 USA

Severe Alcoholic Hepatitis

* Gilead Sciences: ASK1 Inhibitor + prednisolone vs prednisolone alone

* NIAAA: Anakinra/Pentoxyfilline/Zinc (has treatment as well as observational arms)

NASH (non-cirrhosis)

* Intercept: obetacholic acid

* Genfit: elafibranor

* 2 additional studies for NASH expected to open within the next few weeks.

HCV

* U of Florida/U of NC Chapel Hill: Longitudinal, observational study with patients being treated for approved HCV

Contact Monique Rinner, RN MBA, Research Nurse Coordinator (Department of Medicine, Division of Gastroenterology) for more information.

Phone: 774 442-1982
Email: monique.rinner@umassmemorial.org

Emily Bethea, MD
Gastroenterology and Hepatology Division, MGH

Maria Andrea Catana, MD
Gastroenterology, Hepatology
Beth Israel Deaconess Medical Center

Scott Elisofon, MD
Associate Director, Center for Childhood Liver Disease; Medical Director, Liver Transplant Program
Boston Children's Hospital

Alan Epstein, MD
Director of Clinical Gastroenterology
Roger Williams Medical Center

Caroline Jouhourian, MD
Gastroenterologist
Gastroenterology Consultants of Greater Lowell

Vania Kasper, MD
Director of the Center for Liver and Pancreatic Disease, and Medical Director of the CHANGES Program
Hasbro Children's Hospital

Alan Kilby, MD
Gastroenterology, Medical Director for Hepatitis, Assistant Professor Tufts University School of Medicine
Maine Medical Center, Portland Gastroenterology Center

Hersham Malik, MD
Diagnostic Radiology, Assistant Professor Umass Medical School
UMass Memorial Medical Center

Raza Malik, MD
Director of Hepatology, Associate Chief, Gastroenterology

Eric Newton, MD
University Gastroenterology

Daniel Pratt, MD
Clinical Director, Liver Transplantation; Director, Autoimmune & Choelstatic Liver Center
Massachusetts General Hospital

Motaz Qadan, MD
Surgeon
MGH

Anna Rutherford, MD, MPH
Clinical Director, Hepatology
Brigham and Women's Hospital

Thomas Sepe, MD
Director
University Gastroenterology

Uzma Shah, MD
Pediatric Gastroenterology Hepatology and Nutrition

Lawton Shick, MD
Chairperson, Department of Gastroenterology/Hepatology
Dartmouth-Hitchcock Manchester Medical Center

Tiffany Townsend, NP
Gilman Clinic (formerly the Virology Treatment Center)

Chinweike Ukomadu, MD, PhD
Senior Translational Medicine Specialist
Novartis Institute for Biomedical Research

Paul Wrighton, PhD
Prostdoctoral Research Fellow
Brigham and Women's Hospital

Isabel Zacharias, MD
Gastroenterology
UMass Memorial Medical Center

Stephen Zucker, MD
Director of Hepatology
Brigham and Women's Hospital


Mission Ambassadors

Evan Abouaf

Brian Burke

Sue Fardy

Colleen Farrell

Laura Fortin

Sara Hennessey

Andrea Hennigan

Christy Langguth

Meghan McSweeney

Lisa Merowitz

Mary Pawela

Sameer Rahman

Nicola Tessler

Jacqueline Valente

Pam Wallace

In addition to the resources listed above in your state or district, ALF provides these resources that are available no matter where you are. Explore them now…


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