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Liver Life Blog

Rare Liver Diseases Blog Articles

MicHepatorenal Syndrome Conference Hosted by ALF and the National Kidney Foundation

On September 16, 2019 the American Liver Foundation and the National Kidney Foundation hosted an educational conference, “HRS Dialogue,” in Washington, DC. The seminar was designed to create awareness about Hepatorenal Syndrome (HRS), which is often misunderstood. Hepatologists and nephrologists presented, collaborated and shared their experiences, in efforts to highlight best practices of diagnosis and treatment.

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Hepatorenal Syndrome Conference Hosted by ALF and the National Kidney Foundation

On September 16th, the American Liver Foundation and the National Kidney Foundation hosted an educational conference, “HRS Dialogue,” in Washington, DC. The seminar was designed to create awareness about Hepatorenal Syndrome (HRS), which is often ...

Tawny’s Memory Loss Was Linked to Her Liver Disease

Six years ago, things began to go from bad to worse for Tawny Blum (pictured above). In her early thirties, Blum was already struggling to manage not one, but two rare liver diseases: primary sclerosing ...

John Donlon’s Challenge

John Donlon, a self-described, "ordinary Joe" who didn’t play sports in college, is doing something fewer than 1,700 people have ever done – swim the English Channel. And he's using the occasion to raise awareness ...

New Research on Alpha-1 Antitrypsin Deficiency

Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition, passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age. For each ...

Rare Liver Diseases

Alpha-1 Antitrypsin Deficiency and Alagille Syndrome Rare liver diseases are not so rare if they affect you or someone you love. There has been a lot of attention on more common liver diseases recently, such ...

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