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Liver Life Blog

Life with PBC Blog Articles

Ivette and CharlesDespite Primary Biliary Cholangitis, Their Love Goes On

Holidays. Weddings. Anniversaries. Special Occasions. These are often the most joyous moments of our life. But liver disease can make it difficult to fully participate. Recently we received photos shown here of PBC patient Ivette Williams and her husband Charles on their 30th Anniversary.

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Liverace Explains PBC

Talking to young children about Liver Disease can be challenging, and Primary Biliary Cholangitis or PBC is no exception. That's why we put together this animated video to help explain this progressive, and potentially life ...

Have PBC? You May Be at Risk for Another Autoimmune Disease

It is not uncommon for people affected by primary biliary cholangitis (PBC) to have at least one other autoimmune condition. To learn more, we turned to Dr. Craig Lammert, an expert on autoimmune liver diseases ...

Parenting while living with Primary Biliary Cholangitis

Parenting while living with PBC can present all sorts of challenges, such as how to talk to your children about your condition. And because PBC affects only about 65 out of every 100,000 women and ...

Living Donor Liver Transplant Provides New Lease on Life

By Carolyn Evans If you have PBC, the idea that someday you might need a liver transplant isn’t easy to think about.  I know I didn’t want to consider it, when I was diagnosed in ...

Tawny’s Memory Loss Was Linked to Her Liver Disease

Six years ago, things began to go from bad to worse for Tawny Blum (pictured above). In her early thirties, Blum was already struggling to manage not one, but two rare liver diseases: primary sclerosing ...

Despite Primary Biliary Cholangitis, Their Love Goes On

Holidays. Weddings. Anniversaries. Special Occasions. These are often the most joyous moments of our life. But liver disease can make it difficult to fully participate. Recently we received photos shown here of PBC patient Ivette ...

Peer Support Improves Health

Life with PBC can be a lonely journey.  It’s common for people to feel isolated, frightened and overwhelmed after they’ve been diagnosed with the disease and when they experience new symptoms or setbacks.  If you ...

The PBC Diet: What to Eat, What to Avoid

If you have PBC and go online to look for advice about diets, you’ll find lots of contradictory information and impassioned opinions.  To help sort out what to eat, we consulted Megan Gutierrez, Advanced Dietitian ...

Researcher Discusses Fatigue and PBC

We sat down with Dr. Marina Silveira to learn more about her research on primary biliary cholangitis (PBC). Dr. Silveira is a recipient of ALF’s 2018 PBC Fund for the Cure Award.  The American Liver ...

Congress Hears This Liver Patient’s Voice

It is shocking that in 2018 people get on television or Facebook and share details about the most personal things in their lives—sex, money or addiction—but liver disease is still stigmatized.  Every day, I try ...

An Interview with Dr. James L. Boyer: 50 Years of Treating Primary Biliary Cholangitis

Dr. James L. Boyer Founding Director Yale University School of Medicine Liver CenterDr. James L. Boyer is one of our nation’s foremost hepatologists. He has been practicing medicine since 1969 and is the founding director ...

ALF Hosts Living Successfully with Primary Biliary Cholangitis Collaborative

June 8, 2018 Prior to the release of Ursodial 25 years ago, living successfully with what was then called primary biliary cirrhosis (PBC) - now called primary biliary cholangitis (PBC) meant--starkly--surviving for a few years ...

Newly Diagnosed with Primary Biliary Cholangitis: Doctors Offer Advice

The American Liver Foundation recently asked 20 doctors to share the advice they give to people newly diagnosed with Primary Biliary Cholangitis (PBC). Their answers are below. They reassure their patients… The progression of this ...

What I Wish People Knew About PBC

Our inaugural post is by Donna Boll, the moderator of Life With PBC: An American Liver Foundation Support Group on Facebook.  Donna has lived with PBC for 33 years.“PBC can be a lonely disease, as ...

International PBC Day

Help us raise awareness on this special day! Learn Frequently Asked Questions about Primary Biliary Cholangitis Get an overview of the condition and what to expect on your journey with PBC from ALF Patient Advocates ...

2017 PBC Chat

Chances are, if you've recently been diagnosed with Primary Biliary Cholangitis (PBC)- or know someone who has, you probably have questions about the disease. With that in mind, we hosted a Tweetchat on February 8th, ...

New ALF Resources for Primary Biliary Cholangitis

It’s considered a rare disease, but Primary Biliary Cholangitis (PBC) is one of the most talked-about topics across ALF social media, according to our social media guru David Barton. Calling our PBC community “extremely engaged,” ...

Primary Biliary Cholangitis

This month we are focusing on primary biliary cholangitis (PBC), an autoimmune disorder that attacks the liver. We asked John M. Vierling, MD, director of Baylor Liver Health and chief of hepatology at Baylor College ...

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