ALF President & CEO Transitions to New Role
Our President and CEO, Thomas Nealon III will be stepping down from his current position effective April 1, 2020 and become a volunteer. Tom will continue to serve as a highly-valued member of our national board and also as a special advisor to the chair. I am very pleased that Tom will serve in his new role as a volunteer and advisor as we navigate the challenging course ahead of us. The day-to-day management of the ALF will continue under the able leadership of Lynn Seim, Executive Vice President & Chief Operating Officer and David Ticker, Executive Vice President & Chief Financial Officer.
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ALF Remembers Dr. Roberto Groszmann, 2006 Distinguished Scientific Achievement Award Recipient
The American Liver Foundation acknowledges the passing of the 2006 Distinguished Scientific Achievement Award recipient. Roberto Groszmann, MD, passed away in New Haven, Connecticut on January 16, 2021. He was recognized as a pioneer in ...
More from the American Liver Foundation’s New CEO, Lorraine Stiehl
As I shared in my previous blog post, I’m honored to serve as the American Liver Foundation’s new Chief Executive Officer. Working closely with an extraordinarily dedicated team of volunteers and staff, I am committed ...
Meet the American Liver Foundation’s New CEO, Lorraine Stiehl
It is both an honor and a privilege to be able to serve all of you in our liver community. After three decades of working with health non-profits, academic medical institutions and advocacy groups, I am humbled to be asked to lead the American Liver Foundation (ALF). I look forward to ...
Lorraine Stiehl Named as new CEO of American Liver Foundation
(New York, NY, January 1, 2021) – The national board of directors of the American Liver Foundation, the oldest and largest patient advocacy organization for people with liver disease, announces the appointment of Lorraine Stiehl ...
Dr. Gyongyi Szabo Named 2020 ALF Distinguished Scientific Achievement Award Winner
We're proud to announce Dr. Gyongyi Szabo, MD, PhD as the 2020 recipient of our Distinguished Scientific Achievement Award (DSAA). Dr. Szabo is the Mitchell T. Rabkin, M.D. Chair, Professor of Medicine and Faculty Dean ...
ALF’s Ivory Allison Named to Philadelphia’s “Most Influential African-American Leaders” List for 2020
Today we're proud to announce that ALF staffer Ivory Allison recently won recognition as one of Philadelphia's "Most Influential African-American Leaders" by the Philadelphia Tribune. Ms. Allison has been with the organization for nearly eleven years, ...
In Loving Memory of Phil Scarfo
It is with a heavy heart and great sadness that we're writing to let the ALF and greater liver community know that Phil Scarfo passed peacefully at home on Saturday morning. Phil was a treasured ...
American Liver Foundation 2020 Voting Reminder
Democracy Requires Participation. Here are Several Ways to Take Action! Check Your Voter Registration/Register to Vote One of the most important things that you can do to support causes that matter to you and provide your input ...
Liver Awareness Month: Hepatitis
Let’s Stop the Progression of Liver Disease Did you know that hepatitis simply means inflammation of the liver? Inflammation is the body’s natural response to injury and an important part of our healing, or immune, ...
American Liver Foundation 2020 Virtual Community Advocacy Training
Every year, the ALF organizes patients and caregivers to go to Washington DC and present our legislative priorities to their Senators, Congressmen, and Congresswomen. It is a powerful experience to step out of the all-to-common ...
Progression of Liver Disease/Liver Cancer Awareness Month
Did you know there are more than 100 different liver diseases? There are also many common causes of liver disease include: Viruses Genetics Autoimmune disease Excessive alcohol use Poor diet and/or obesity Reactions to medications, ...
Advocacy Days 2020
Sign up and join us! Event Background Capitol Hill remains closed to visitors in response to the COVID-19 pandemic, but Congress is still conducting its annual business and working on legislation and policy priorities. Many congressional offices are ...
Liver Life Blog Post World Hepatitis Day 2020
You may have seen a previous Liver Life Blog post from Lindsay Ventura. Here’s a vlog from Lindsay where she introduces herself and shares some information about World Hepatitis Day! ...
Liver Disease Does Not Discriminate
And yet… Hepatitis C (HCV) is more prevalent in African Americans than in any other racial group in the U.S. and African Americans are more likely to be deemed ineligible for HCV treatment than non-African ...
Dr. David Bernstein and ALF’s Veronica Perez Talk About Your Liver
Even before Americans embraced social distancing, the American Liver Foundation was exploring a new way to reach out to those who are interested in learning about liver disease. Dr. David Bernstein joined the Greater New ...
Dr. Terry Box Recognized for Lifetime Achievement
As we experience this difficult spring, we are comforted by the thought that spring is the season of rebirth, when dormant plants become green - and transplant patients are reminded of their second chance at ...
ALF President & CEO Transitions to New Role
This last month is one without precedent. Our world as we know it has changed dramatically as a result of the global COVID-19 coronavirus pandemic. Tragically, the momentum generated by the American Liver Foundation has ...
Important Information: The Coronavirus and Liver Disease
March 9, 2020 Coronavirus Disease 2019 (COVID-19) is a respiratory illness that is mainly spread from person to person through people who are in close contact with one another, touching a surface or object that has the virus ...
ALF Statement on COVID-19 Coronavirus
March 5, 2020 NOTE: Please click here for the latest CDC statement "People at Risk for Serious Illness from COVID-19" The CDC is closely monitoring and responding to an outbreak of respiratory disease caused by ...
ALF Hosts Leadership Conference in New York
Each year, the American Liver Foundation family gathers in New York City to touch base, take stock and prepare to move forward. From February 9th to the 12th, sixty of us—Board members, National leadership, Division ...
ALF’s Nealon Looks Back at Go Dry in January Campaign
The beginning of the year is often the time for setting goals and making changes, and some of the most popular resolutions include living a healthier lifestyle and helping others. That inspired us to create ...
ALF Salutes Apke, Haley and Bush for Their Support During “My Cleats My Cause” Campaign
The American Liver Foundation is proud to be associated with athletes in many different sports—swimmers, runners, Tough Mudders and others—we are always awed by their athletic accomplishments and honored to be associated with them. But ...
Nealon Reflects on 2019 and Projects a Bright 2020
I've spent a part of January looking forward to 2020 and back at 2019. I recognize ALF is reaching more people, in more ways and more places. Our activities are broadly categorized as advocacy, patient ...
ALF Helps Bridge Basic Science and Liver Disease
The American Liver Foundation has long been involved in preparing the next generation of medical providers to recognize and treat liver disease. Why? Dr. Irwin M. Arias, for whom a symposium held last month in ...
ALF Attends 2019 AASLD Liver Meetings in Boston
The American Association for the Study of Liver Disease (AASLD) founded the American Liver Foundation in 1976 to ensure that there was a national organization dedicated to raising awareness and providing liver education for patients ...
ALF Corporate Council Meeting Reports “We Are Better Together”
The American Liver Foundation’s most recent Corporate Council meeting, on September 24, was extremely productive. We were able to share an international patient survey with council members to spark an important conversation about best ways ...
Hepatorenal Syndrome Conference Hosted by ALF and the National Kidney Foundation
On September 16th, the American Liver Foundation and the National Kidney Foundation hosted an educational conference, “HRS Dialogue,” in Washington, DC. The seminar was designed to create awareness about Hepatorenal Syndrome (HRS), which is often ...
Dr. David Brenner Named 2019 ALF Distinguished Scientific Achievement Award Winner
We’re proud to announce Dr. David Brenner as the 2019 recipient of the American Liver Foundation’s most prestigious recognition, the Distinguished Scientific Achievement Award. David Brenner is Vice Chancellor for Health Sciences and distinguished professor ...
September is Primary Biliary Cholangitis (PBC) Awareness Month
What do potluck dinners, Ask the Experts events, Facebook posts and the ALF Helpline have in common? They all help raise awareness, share information and support those affected by primary biliary cholangitis. September was PBC ...
Liver Cancer Awareness Month 2019
It’s October, and that means it’s Liver Cancer Awareness Month, and this year, the American Liver Foundation has partnered with Gilead for a public awareness campaign. The efforts aim to encourage people who are at ...
Ask the Experts: The ABC’s of Viral Hepatitis
Each fall, children around the country return to school—many to learn their ABCs, the foundation of their entire education. On September 10th, the American Liver Foundation’s Connecticut Division presented an educational program, “Ask the Experts: ...
ALF Participates in World Hepatitis Day to “Find the Missing Millions”
World Hepatitis Day was July 28th and ALF, together with other public health organizations, called on people from across the country and around the world to take action and raise awareness to “Find the Missing ...
Block HIV/HCV Meeting September 23, 2019 in Asheville, NC
Learn More Program Description Approximately 25% of all individuals infected with HIV are coinfected with HCV.1 Of critical significance, HIV increases the rate of progression of HCV-related hepatic fibrosis, and HCV is associated with a ...
Board Member John Donlon Swims to Raise Awareness for ALF
John Donlon went into the water at 8:33 am on the dreary morning of July 18, 2019. Over the next nine and a half hours he swam from New York City’s Battery Park, up the ...
Mindfulness-Based Stress Reduction Training Hosted by ALF Patient Advisory Committee and PBC Foundation
The American Liver Foundation is always looking for an opportunity to present innovative new solutions to the challenges of living with liver disease like primary biliary cholangitis (PBC). We seized such an opportunity last month ...
Rodgers Raises Awareness for ALF and Liver Disease
The American Liver Foundation’s new ambassador, Will Rodgers, has a unique way of raising awareness about liver disease. As an up-and-coming NASCAR driver, Will brings his own perspective to the effort. Hawaiian-born Will, now 24, ...
ALF Participates in 50th Anniversary Digestive Disease Week Conference
PHOTO CAPTION: Yuko Kono, MD, Gastroenterologist & Hepatologist, Clinical Professor of Medicine with UC San Diego Health (center), ALF’s National President and CEO Tom Nealon (left) and Division Executive Director Scott Suckow (right). The 50th ...
ALF Leads Eliminate Hepatitis C San Diego County Initiative
I am proud to note that the American Liver Foundation’s Pacific Coast Division (PCD) has been chosen as facilitating agency for a planning process that involves healthcare organizations, corrections facilities, boarder health advocates, social service ...
ALF Advocates for Liver Disease on Capitol Hill
Each year, as part of our advocacy mission, the American Liver Foundation brings individuals from across ALF’s nationwide liver community to visit their congressional representatives and share information about the needs of their constituents who ...
ALF Help Line Provides Information and Support for All
Promoting support services is one of the pillars of the American Liver Foundation’s mission, together with education, advocacy and research. We support those affected by liver disease in different ways but the most common point ...
Video Based on Article by Dr. Nancy Reau of the ALF National Medical Advisory Committee
In addition to live educational events like Ask the Experts, as well as webinars on aspects of liver disease and our robust website and library of brochures, the American Liver Foundation creates educational videos. The ...
ALF Launches Academic Debates in Chicago and New York
In an interesting juxtaposition, this month two of the American Liver Foundation’s Divisions held Academic Debates less than a week apart—the Great Lakes Division held their 16th annual debate and the Greater New York Division ...
NASH Facebook Support Group
I am pleased to note that membership in the American Liver Foundation’s new NASH Facebook Support Group has surpassed 500 members. This support community is intended for those affected by Nonalcoholic Steatohepatitis (NASH). The group is ...
ALF Welcomes New Members to Corporate Council
The American Liver Foundation’s work is made possible by a diverse group of supporters. Individuals whose lives and hearts have been touched in some way by liver disease are by far the most numerous. We ...
Listening Session with the FDA on Rare Pediatric Diseases
On November 5, 2018, the American Liver Foundation (ALF) participated in a one-hour listening session on rare pediatric liver diseases with representatives from the Food and Drug Administration (FDA). The goal of the listening session ...
2019 ALF Leadership Conference
Every January, the entire universe of the American Liver Foundation—national leadership, executive directors, community educators, event staff and many Board and Medical Advisory Committee members—come together in New York. We are from many backgrounds and ...
28th Annual Arias Symposium Held in Cambridge November 29th
Two weeks ago, when I shared the news that the American Liver Foundation’s Heartland Division had hosted Academic Debates in Cleveland, Ohio for the first time, I commented that helping medical professionals keep abreast of ...
First Annual Anthony S. Tavill, MD Academic Debate Held in Cleveland
As we enter a new year, I’m pleased to note that the American Liver Foundation’s Heartland Division hosted an inaugural event as 2018 ended. On December 12th the “Anthony S. Tavill, MD Academic Debates”, named ...
ALF’s CEO, Tom Nealon, Reflects Back on 2018 Accomplishments
As one year turns to the next, one of my favorite things to do is to reflect on how the American Liver Foundation (ALF) has grown in recent years. Among the things that make me ...
ALF’s Bolter Recognized by New York State Department of Health
Photo Caption: Joanne Morne, Director AIDS Institute, Paul Bolter, Howard Zucker, M.D., Commissioner of Health, New York I am delighted to let you know that one of the American Liver Foundation’s own, Paul Bolter, Community ...
ALF… Tough in the Mud!
Until recently, the words “Tough Mudder” were just words to me. Then members of our American Liver Foundation community began to be involved in these challenging events – and ALF as an organization decided to ...
ALF Names Dr. Houghton as 2018 Distinguished Scientific Achievement Award Recipient
We're proud to announce Dr. Michael Houghton, Ph.D. as the 2018 recipient of our most prestigious recognition, the Distinguished Scientific Achievement Award. Working with Qui-Lim Choo and George Kuo at the Chiron corporation and Daniel ...
ALF Honors Veterans, Educates Public and Encourages Testing
There are over 20 million military veterans in the United States. They served our country to protect our liberties and keep the world safe. Now the American Liver Foundation is working to keep them safe ...
ALF Raises Awareness About Liver Cancer in October
November 2, 2018 Each October, the American Liver Foundation helps to raise awareness about liver cancer with a media campaign during Liver Cancer Awareness Month. This year, we placed 30-second radio ads in New York ...
Liver Cancer Awareness Month Media Alert
In recognition of Liver Cancer Awareness Month, the American Liver Foundation is working to raise awareness of risk factors and to help increase early detection for patients surrounding liver cancer. It’s critical for all Americans ...
ALF Makes Connections with Latino Communities in Greater Los Angeles Area
The American Liver Foundation’s Greater Los Angeles Division serves a diverse population, from farmers and ranchers to filmmakers and recent immigrants. Many of them share a common problem…their lives have been impacted by one of ...
A Meeting of the ALF Patient Advisory Committee
Eleven individuals whose lives have been affected by hepatic encephalopathy (HE) came together in July to become the American Liver Foundation’s newest patient advocates as members of our National Patient Advisory Committee (NPAC). Eight of ...
Liver Cancer Awareness Month 2018
It’s October, and that means it’s Liver Cancer Awareness Month! Once again, the American Liver Foundation has partnered with Bayer and Gilead for a public awareness campaign. The efforts aim to encourage people who are at ...
ALF Announces Associate Healthcare Professional Management Series
August 3, 2018 One of the pillars of the American Liver Foundation’s mission is education. Although ‘education” is a single, simple word, ALF’s educational activities encompass programs for a wide range of people, including members ...
ALF Announces Recipients of 2018 Research Awards Program
July 27, 2018 This week, the American Liver Foundation formally announced the recipients of our 2018 Research Award Program. These monetary grants to the next generation of medical researchers have an importance that goes far ...
7/28 is World Hepatitis Day 2018!
#WorldHepatitisDay is Saturday, July 28th. This year's theme is "Find the Missing Millions" because 9 of 10 people living with Viral Hepatitis around the globe don't even know they have it! Help raise awareness on this ...
ALF’s Global Reach
July 6, 2018 For a number of years, the American Liver Foundation has worked to bring information about liver wellness and liver disease to all communities across this country. Whether extending our geographical reach or ...
Liver Lowdown June 2018
1st Annual International NASH Day Today is International NASH Day! The American Liver foundation is supporting the NASH Education Program in launching the first-ever International NASH Day in over 25 cities worldwide including New York, ...
ALF Hosts Living Successfully with Primary Biliary Cholangitis Collaborative
June 8, 2018 Prior to the release of Ursodial 25 years ago, living successfully with what was then called primary biliary cirrhosis (PBC) - now called primary biliary cholangitis (PBC) meant--starkly--surviving for a few years ...
International NASH Day 2018 (Non-Alcoholic Steatohepatitis)
This year marks the beginning of a new day of recognition- the first ever International NASH Day (Non-Alcohol Steatohepatitis) on Tuesday, June 12th! We're proud to join a global coalition of organizations dedicated to raising ...
ALF Hosts Biliary Atresia / Pediatric Liver Transplant Meetings in Salt Lake City
The American Liver Foundation is steadily extending our activities to new areas. In addition to new educational programs, an upgraded website and coalitions with other organizations serving similar populations, our geographical reach is increasing. In ...
78 Team Members Challenged by Weather in 2018 Boston Marathon
"Historically awful." That's what The Weather Channel called the weather for the 2018 Boston Marathon, one of the world's oldest and most prestigious running events. This year, the starting temperature was 38 degrees, the coldest ...
ALF Attends FDA Meetings in Maryland
The American Liver Foundation’s latest National Patient Advocacy Committee cohort consists of individuals who have been affected by alcohol-related liver disease. Within weeks of their training at last month’s Advocacy Day, they again went into ...
ALF Annual Advocacy Day
From Monday, March 12th to Wednesday, March 14th, fifty five American Liver Foundation patient advocates and staff participated in our ALF Annual Advocacy Day in Washington D.C. and our pre- and post-activities. What can fifty-five ...
Living Donor Liver Transplant Webinar
In collaboration with University of Pittsburgh Medical Center (UPMC), the American Liver Foundation presented a webinar, Living-Donor Liver Transplantation: What Donors and Patients Need to Know, on March 8th. Some of the statistics shocked even ...
ALF Celebrates New Website
The American Liver Foundation’s leadership was aware that our 2005 website no longer served ALF’s varied constituencies as it once had. Not only was its appearance outdated but its size had ballooned to more than ...
February 2018 ALF News
February is a short month. Its 28 days are filled this year with significant opportunities to raise awareness about liver diseases and the many needs of liver patients and their loved ones. On the first ...
ALF Hosts Leadership Conference in New York City
The American Liver Foundation’s Leadership Conference formally convened in New York on Monday January 22nd with an update from ALF’s leadership. After remarks by Board Chair Nick DeRoma, National Board member Alan Dorr and a ...
Scott Suckow Named Star of Advocacy
Hearty congratulations to Scott Suckow, Executive Director of the American Liver Foundation's Pacific Coast Division, who will be recognized as a Star of Advocacy by the California Chronic Care Coalition (CCCC) at an event in ...
A Look Back on 2017
One of my greatest pleasures during my years with the American Liver Foundation has been to see the organization’s steady development and increasing ability to help individuals with liver disease and those who care for ...
2018 Research, Fellowship and PBC Awards
Supporting advances in liver disease research by cultivating early career researchers in the field of hepatology. Application Deadline: Friday, December 15th, 2017 Recipient Notification: May 2018 Award Start Date: July 1, 2018 Applications are reviewed ...
2017 ALF Distinguished Scientific Achievement Award Winner
Dr. Arun Sanyal Professor of Medicine, Physiology and Molecular Pathology Virginia Commonwealth University School of Medicine Richmond, Virginia. Dr. Sanyal has been a physician-scientist for 25 years and his research has spanned the spectrum of ...
News from the American Liver Foundation
10/13/17 According to the Centers for Disease Control and Prevention, new HCV infections in the United States nearly tripled between the years 2010 and 2015 with the highest rates among young people, mainly 20- to 29-years ...
ALF Elects New Chairman to Its National Board of Directors
The American Liver Foundation (ALF) announced today the appointment of Nicholas DeRoma as the new chairman of the ALF’s National Board of Directors. “After nearly five years as the chairman of ALF’s Board, I could ...
Primary Sclerosing Cholangitis (PSC)
By David Assis, MD Primary Sclerosing Cholangitis (PSC) is a rare, chronic disease of the bile ducts with an unknown cause that results in scars and inflammation of the biliary system. Patients with PSC may ...
ALF Patient Advisory Council
Hepatitis C Patient Advocates Speak Out To be a hepatitis C patient advocate is to offer your time and energy to generate greater awareness about a disease that affects some four million Americans and try ...
ALF at 40
Happy New Year! This is the first issue of Liver Lowdown in 2016. This year, the American Liver Foundation (ALF) will celebrate four decades of providing help and hope to those who are battling liver ...
Tom Nealon, ALF CEO & Board Chair on World Hepatitis Day: Eradicating a Silent Epidemic is Within Our Reach
If I told you that thousands of Americans are dying every year from a disease that is 10 times more infectious than HIV – and more deadly too – yet preventable and curable, the chances that you ...
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