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Liver Life Blog

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Capitol BuildingAdvocacy Days 2020

Capitol Hill remains closed to visitors in response to the COVID-19 pandemic, but Congress is still conducting its annual business and working on legislation and policy priorities. Many congressional offices are now working remotely and have largely adapted to responding to constituents with calls, e-mails, and virtual meetings. Right now, Congress is particularly interested in constituent priorities due to the upcoming November elections.  

Senators and Representatives are currently deciding how much annual funding to provide towards medical research and public health priorities through the FY 2021 appropriations process, including resources for programs that support patients impacted by conditions of the liver. Lawmakers are also deciding which bills might be passed during the “lame duck” legislative session at the end of the year. Make your voice heard and ensure your legislators are working behalf of the liver advocacy community during this important time.  

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Carley Vogel Virtual Advocacy 2021

Patient Advocate Carley VogelPatient Advocate Carley Vogel talks about her participation in Hill Week with ALF, and asks that you join us this May as we reach out to lawmakers and ask them to prioritize ...

Liver Advocacy Week 2021 Introduction

Liver Advocacy Week 2021 Introduction with Warren HallALF's 2021 Advocacy Week is May 10th - 14th. What is advocacy? Helpline Manager Warren Hall gives an overview, and explains why patient representation is so important. Learn ...

Tune in and Watch Will Rodgers #RaceToEndHepC in Nashville!

We're excited to announce that ALF #liveradvocate Will Rodgers is back at it this weekend, racing in the NASCAR Xfinity Series and raising awareness about liver disease at high speeds! He'll be competing in the Tennessee Lottery ...

February 28th is Rare Disease Day!

Have you ever wondered what makes a disease a rare disease? Rare diseases are diseases which affect a small number of people compared to the general population. In Europe, a disease is considered rare when ...

American Liver Foundation 2020 Voting Reminder

Democracy Requires Participation. Here are Several Ways to Take Action! Check Your Voter Registration/Register to Vote  One of the most important things that you can do to support causes that matter to you and provide your input ...

American Liver Foundation 2020 Virtual Community Advocacy Training

Every year, the ALF organizes patients and caregivers to go to Washington DC and present our legislative priorities to their Senators, Congressmen, and Congresswomen. It is a powerful experience to step out of the all-to-common ...

Advocacy Days 2020

Sign up and join us! Event Background Capitol Hill remains closed to visitors in response to the COVID-19 pandemic, but Congress is still conducting its annual business and working on legislation and policy priorities. Many congressional offices are ...

Liver Life Blog Post World Hepatitis Day 2020

You may have seen a previous Liver Life Blog post from Lindsay Ventura.  Here’s a vlog from Lindsay where she introduces herself and shares some information about World Hepatitis Day! ...

ALF Hosts Leadership Conference in New York

Each year, the American Liver Foundation family gathers in New York City to touch base, take stock and prepare to move forward.  From February 9th to the 12th, sixty of us—Board members, National leadership, Division ...

ALF Corporate Council Meeting Reports “We Are Better Together”

The American Liver Foundation’s most recent Corporate Council meeting, on September 24, was extremely productive. We were able to share an international patient survey with council members to spark an important conversation about best ways ...

Hepatorenal Syndrome Conference Hosted by ALF and the National Kidney Foundation

On September 16th, the American Liver Foundation and the National Kidney Foundation hosted an educational conference, “HRS Dialogue,” in Washington, DC. The seminar was designed to create awareness about Hepatorenal Syndrome (HRS), which is often ...

September is Primary Biliary Cholangitis (PBC) Awareness Month

What do potluck dinners, Ask the Experts events, Facebook posts and the ALF Helpline have in common? They all help raise awareness, share information and support those affected by primary biliary cholangitis. September was PBC ...

Liver Cancer Awareness Month 2019

It’s October, and that means it’s Liver Cancer Awareness Month, and this year, the American Liver Foundation has partnered with Gilead for a public awareness campaign. The efforts aim to encourage people who are at ...

ALF Participates in World Hepatitis Day to “Find the Missing Millions”

World Hepatitis Day was July 28th and ALF, together with other public health organizations, called on people from across the country and around the world to take action and raise awareness to “Find the Missing ...

ALF Advocates for Liver Disease on Capitol Hill

Each year, as part of our advocacy mission, the American Liver Foundation brings individuals from across ALF’s nationwide liver community to visit their congressional representatives and share information about the needs of their constituents who ...

ALF Honors Veterans, Educates Public and Encourages Testing

There are over 20 million military veterans in the United States. They served our country to protect our liberties and keep the world safe. Now the American Liver Foundation is working to keep them safe ...

A Meeting of the ALF Patient Advisory Committee

Eleven individuals whose lives have been affected by hepatic encephalopathy (HE) came together in July to become the American Liver Foundation’s newest patient advocates as members of our National Patient Advisory Committee (NPAC). Eight of ...

ALF Annual Advocacy Day

From Monday, March 12th to Wednesday, March 14th,  fifty five American Liver Foundation patient advocates and staff participated in our ALF Annual Advocacy Day in Washington D.C. and our pre- and post-activities.  What can fifty-five ...

ALF Illinois Advocacy!

ALF Great Lakes Division hosted a table at the state capitol in Springfield, Illinois on Tuesday, November 7th 2017. The Great Lakes Division answered liver related question and raised awareness about liver disease and wellness! ...

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